How many generations of hemophilia can you count?

[Shellye Horowitz]

I was having a conversation recently with another hemophilia community member – both of us could go back many generations when we traced hemophilia. I could count six and they could count five! Do you have multiple generations of hemophilia in your family? How many can you trace?

[Carrie Barnes Recker]

I can’t trace it in my family. I am generally am considered to be a spontaneous. I had a great uncle die of a “blood disease,” at the age of 4. He probably had VWD, which I do, and my Mom and sisters, too. I think it is good to not be able to trace hemophilia, but I also think it would be amazing!

[Shellye Horowitz]

You wrote that you think it is good to not be able to trace hemophilia and I would love to hear more from you about that. What do you think are the benefits of not being able to trace it?

[Carrie Barnes Recker]

If I had family history, I would have losses like most of the people with family history. I am glad I don’t. But, I wish I had at least someone else in the family (a woman) who could have told me I had hemophilia way before I was 28.

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