- Last Post
Inhibitors are a complication that can prove to be devastating. Both of my sons have developed inhibitors and my youngest still lives with an active inhibitor. He has developed two target joints as a result of prolonged bleeding. What do you know about inhibitors? Visit NHF's website for more information.
- 2 months, 2 weeks ago
Living with Hemophilia
This forum is for people living with hemophilia to connect, ask questions and share experiences. Discussion topics here range from independent living to managing work and social lives. All individuals living with hemophilia and carriers are welcome to join.
- 1 month, 3 weeks ago
Welcome to the Hemophilia News Today forum. I am your moderator, Cazandra "Caz" Campos-MacDonald. I have two sons with severe hemophilia A and my youngest son has an inhibitor. My older brother died from hemophilia complications early after his birth. My oldest son, Julian, is 25 and living on his own and my youngest, Caeleb, is 15 and a sophomore in high school. The journey of raising two sons with a bleeding disorder has definitely had its ups and downs. I find writing helps me work through the difficulties and celebrate the joys in life. Check out my column, Hemophilia 24/7! Take a moment to introduce yourself! Happy posting!
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Parents and Caregivers
This forum is for parents and caregivers of children and other dependants with hemophilia. This is the place to ask questions, share your stories, and find support. Topics will include caring for children of all ages, diagnosing bleeds in babies and toddlers, and getting blood stains out of anything.
- 3 weeks ago
Flash Briefings and Podcasts
This forum is for promoting our flash briefings, podcasts, and other multimedia content. You can find all of our flash briefings on SoundCloud, and activate a skill on any Amazon Alexa devices. Hope you all enjoy listening to these!
- 1 year, 1 month ago
Women with Hemophilia
This forum is for women with hemophilia, and female carriers of hemophilia. Women bleed, too! This is the place to discuss being a Hemophiliac, finding healthcare, and to share your stories about the unique challenges we face from entering the workforce to living independently.
- 10 months ago
This forum is for discussion, news and information regarding treatments for hemophilia.
- 1 year ago
This forum is for individuals to share knowledge about hemophilia inheritance patterns. Community members can support each other here as they make decisions regarding family planning.
- 1 year, 1 month ago
Types of Hemophilia
This forum is designed for newly diagnosed patients, caregivers, family and friends who are seeking information about the different types of hemophilia. This is where people can ask basic questions about hemophilia diagnosis, and obtain support through the initial diagnosis stage.
- 1 year, 4 months ago