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Living with Hemophilia
This forum is for people living with hemophilia to connect, ask questions and share experiences. Discussion topics here range from independent living to managing work and social lives. All individuals living with hemophilia and carriers are welcome to join.
- 1 week, 6 days ago
Parents and Caregivers
This forum is for parents and caregivers of children and other dependants with hemophilia. This is the place to ask questions, share your stories, and find support. Topics will include caring for children of all ages, diagnosing bleeds in babies and toddlers, and getting blood stains out of anything.
- 5 months, 3 weeks ago
Flash Briefings and Podcasts
This forum is for promoting our flash briefings, podcasts, and other multimedia content. You can find all of our flash briefings on SoundCloud, and activate a skill on any Amazon Alexa devices. Hope you all enjoy listening to these!
- 10 months ago
Women with Hemophilia
This forum is for women with hemophilia, and female carriers of hemophilia. Women bleed, too! This is the place to discuss being a Hemophiliac, finding healthcare, and to share your stories about the unique challenges we face from entering the workforce to living independently.
- 6 months, 1 week ago
This forum is for discussion, news and information regarding treatments for hemophilia.
- 9 months, 1 week ago
This forum is for individuals to share knowledge about hemophilia inheritance patterns. Community members can support each other here as they make decisions regarding family planning.
- 10 months ago
Types of Hemophilia
This forum is designed for newly diagnosed patients, caregivers, family and friends who are seeking information about the different types of hemophilia. This is where people can ask basic questions about hemophilia diagnosis, and obtain support through the initial diagnosis stage.
- 1 year ago
- Living with Hemophilia