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    • #12230

      Many people with mild hemophilia rarely have issues with prolonged bleeding. Mild hemophilia often only minimally impacts a person’s life, and understanding how and when to treat is critical.

      If you have mild hemophilia, what is one piece of advice you would give to another affected individual?

       

    • #12262
      Jennifer Lynne
      Participant

      Please don’t minimize the struggles of persons with mild hemophilia! Women with mild hemophilia are very much affected by prolonged bleeding because of their monthly menstrual cycle. We become anemic and often undergo many procedures to stop the bleeding. Many of us have joint and muscle bleeds and are on prophylactic treatment. To say we rarely have issues with prolonged bleeding and it only minimally impacts a person’s life is not the case for many of us!

      • #12263

        Hi Jennifer, Thank you for your response. I did not mean that all with a mild diagnosis have the same experience as each other. I am speaking of those in the mild population who rarely bleed. It is easy for these individuals to not give their hemophilia a second thought until a serious emergency is upon them. Complacency is dangerous, and as you mentioned, there are those with mild who bleed more like moderates!

        Thank you for clarifying the plight of those who do have prolonged bleeding with mild hemophilia. Regardless of the level of severity, we must respect our condition and pay it the attention needed. Thank you for advocating for women!

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