• Jennifer Lynne

    March 12, 2022 at 11:04 am

    Please don’t minimize the struggles of persons with mild hemophilia! Women with mild hemophilia are very much affected by prolonged bleeding because of their monthly menstrual cycle. We become anemic and often undergo many procedures to stop the bleeding. Many of us have joint and muscle bleeds and are on prophylactic treatment. To say we rarely have issues with prolonged bleeding and it only minimally impacts a person’s life is not the case for many of us!

    • Cazandra Campos-MacDonald

      March 13, 2022 at 12:16 am

      Hi Jennifer, Thank you for your response. I did not mean that all with a mild diagnosis have the same experience as each other. I am speaking of those in the mild population who rarely bleed. It is easy for these individuals to not give their hemophilia a second thought until a serious emergency is upon them. Complacency is dangerous, and as you mentioned, there are those with mild who bleed more like moderates!

      Thank you for clarifying the plight of those who do have prolonged bleeding with mild hemophilia. Regardless of the level of severity, we must respect our condition and pay it the attention needed. Thank you for advocating for women!

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