How Chronic Illness Makes My Husband a Better Parent
My husband, Jared, and I are currently in the process of looking for preschools for our daughter, Cittie. She’s almost 4, but sometimes she acts and speaks as if she’s much older. Cittie…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
‘Nothing special’ is special in a life with hemophilia in the picture
Life when you’re married to someone with severe hemophilia B often feels unpredictable. One moment, everything seems fine, and the next, a spontaneous bleed or unexpected health concern throws everything into chaos. Over…
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Ensuring Our Home Is Accessible for My Husband With Hemophilia
Home improvement is a popular hobby here in the Philippines. Over the past few years, online communities dedicated to home decorating and renovation have sprouted up all over social media. Lockdown boredom…
Because of Chronic Illness, My Husband and I Evaluate Our Relationship Regularly
As my husband, Jared, and I grow deeper in our marriage, the reality that we will spend our entire lives with chronic illness becomes increasingly clear. Jared has severe hemophilia B and a…
What Happens When Both Spouses Get Sick at the Same Time?
As I write this, I’m battling my first major cough and cold since the COVID-19 pandemic started. Regular mask-wearing seems to have lowered our chances of getting sick, which is good. But now…
An Important Birthday Has Me Thinking About Chronic Illness and Aging
My husband, Jared, and I are both in our late 20s. In a few months, Jared will be turning 30, and I will follow next year. I used to fear the day I would…
Navigating Parenthood and Household Chores Without Help
My daughter’s nanny left last week for a two-week vacation to her hometown. Since then, my husband, Jared, and I have been getting by without an extra pair of hands to help with chores…
Planning My Family’s Future by Evaluating Mental Health and Wealth
One of my current goals in life is to become wealthy. I cannot deny that I need more personal finances than I currently have to sustain my family and live a balanced and…
How Our Daughter Copes With Hemophilia in the Family
My daughter, Cittie, is now 3 and a half years old. She’s grown so much over the past years, from a tiny and helpless little baby to a more independent preschooler with a…
Examining Workplace Expectations for People With Disabilities
I recently came across the idea that people with disabilities (PWDs) should be held to the same standards as everyone else in terms of productivity and output. As a PWD and an entrepreneur, I…
An Open Letter to Exhausted Care Partners: I See You
To those caring for a spouse or partner with chronic illness: Maybe you knew about your partner’s condition from the get-go. Or maybe they developed a chronic illness or disability somewhere along the…
Inconveniences Are Annoying, but They Aren’t the End of the World
It’s normal to come across inconveniences in daily life. Imagine being in the following scenarios: You’re filling out an important document with a pen when it runs out of ink midsentence. It’s a…
Unlike My Younger Days, I Now Appreciate Life’s Mundane Moments
When I was younger, I often yearned for a fast-paced life. As a teenager, I rarely got to leave the house by myself. I coped by working on novels while locked away in my…
