The Hemophilia Shadow Monster and My ‘In-between Bucket List’
Hemophilia is a lifelong condition, both for my husband, Jared, and me. He’s had hemophilia B since he was born, and until a cure is found, it’s here to stay. While I…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
Our child’s graduation was a celebration of our family’s wins
Last weekend, our daughter graduated from kindergarten. As she proudly crossed the stage, I found myself reflecting on how far we’ve come — not just in terms of our child’s academics, but as a…
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A Childlike Spirit Is Essential to Cope With Hemophilia and Seizures
Parenthood has transformed my husband, Jared, and me in many ways. We’ve had to be responsible for a lot of things. We must look after our daughter, Cittie, as well as our home, our…
We’re Fine Doing Things on Our Own Because We’re Well-adjusted to Chronic Illness
My husband, Jared, and I are just starting to figure out family life. As novices to the world of parenting and homemaking, we’re navigating our child’s formative years and learning to maintain a household…
How Chronic Illness Makes My Husband a Better Parent
My husband, Jared, and I are currently in the process of looking for preschools for our daughter, Cittie. She’s almost 4, but sometimes she acts and speaks as if she’s much older. Cittie…
Ensuring Our Home Is Accessible for My Husband With Hemophilia
Home improvement is a popular hobby here in the Philippines. Over the past few years, online communities dedicated to home decorating and renovation have sprouted up all over social media. Lockdown boredom…
Because of Chronic Illness, My Husband and I Evaluate Our Relationship Regularly
As my husband, Jared, and I grow deeper in our marriage, the reality that we will spend our entire lives with chronic illness becomes increasingly clear. Jared has severe hemophilia B and a…
What Happens When Both Spouses Get Sick at the Same Time?
As I write this, I’m battling my first major cough and cold since the COVID-19 pandemic started. Regular mask-wearing seems to have lowered our chances of getting sick, which is good. But now…
An Important Birthday Has Me Thinking About Chronic Illness and Aging
My husband, Jared, and I are both in our late 20s. In a few months, Jared will be turning 30, and I will follow next year. I used to fear the day I would…
Navigating Parenthood and Household Chores Without Help
My daughter’s nanny left last week for a two-week vacation to her hometown. Since then, my husband, Jared, and I have been getting by without an extra pair of hands to help with chores…
Planning My Family’s Future by Evaluating Mental Health and Wealth
One of my current goals in life is to become wealthy. I cannot deny that I need more personal finances than I currently have to sustain my family and live a balanced and…
How Our Daughter Copes With Hemophilia in the Family
My daughter, Cittie, is now 3 and a half years old. She’s grown so much over the past years, from a tiny and helpless little baby to a more independent preschooler with a…
Examining Workplace Expectations for People With Disabilities
I recently came across the idea that people with disabilities (PWDs) should be held to the same standards as everyone else in terms of productivity and output. As a PWD and an entrepreneur, I…
