Reflecting on what could’ve been helps me appreciate the present
Whenever I scroll through my Instagram feed, I often reflect on the “what ifs” in my life. For example, what if my life had unfolded exactly as I had envisioned it during my youth?…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
We’re learning to reframe mobility aids as freedom, not constraint
When my husband, Jared, was growing up, people in his community didn’t always speak kindly about mobility aids. Crutches, wheelchairs, and canes were often seen as signs of helplessness, things you turned to only…
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Why our home is a sanctuary for friends who are struggling
My husband, Jared, and I have an open-door policy for our friends. We warmly welcome them, whether they need a place to stay for the night, a safe haven after a tough experience, a…
Expanding our fur family has brought happiness into our home
My husband, Jared, and I have been fur parents for a while. In 2020, we welcomed our first family pet, a golden retriever named Lucky, followed by a delightful Himalayan cat we named…
Accepting limitations is a difficult part of living with chronic illness
A recent family vacation to the beautiful island of Bohol in the Philippines was filled with unforgettable moments. We climbed steep steps to take in the mesmerizing view of the Chocolate Hills, crossed…
A new definition of strength, as seen through the eyes of a child
I wish more people would see my husband, Jared, the way our daughter sees him. In her eyes, he’s a revered figure, just short of a cape-wearing superhero. Now nearly 5, she’s at an…
Planning and spontaneity are both crucial in life with hemophilia
Meticulous planning is familiar to many of us in the hemophilia community. I’ve previously discussed how my family accommodates my husband Jared’s severe hemophilia B while planning ahead, whether it’s for…
My husband’s hemophilia teaches me to embrace the seasons of life
While searching for content ideas for a client, I stumbled on an Instagram post that immediately caught my attention. “Human beings are seasonal,” the post stated — more or less, as I can’t recall…
5 ordinary items that are unique to our hemophilia home
In the hustle and bustle of daily life, we often overlook the extraordinary within the ordinary. My husband, Jared, has hemophilia, and we’ve found that living with the bleeding disorder has a…
Sometimes ‘handling illness well’ means avoiding feeling like a burden
My husband, Jared, carries his hemophilia well. At first glance, he appears healthy, with a solid physique, and he actively engages in sports. The keloid scars running down his arms contribute to…
Social maladjustment is an unspoken issue in the hemophilia community
As a “HemoWife,” I’ve had the privilege of connecting with numerous people in the hemophilia community. While our shared experiences allow us to create a strong bond, one important topic often remains…
A letter to my ‘HemoHusband’ on our 5-year anniversary
My husband, Jared, and I have now been married five years! In celebration of our anniversary, I dedicate this letter to him. To my dearest husband (and our daughter’s one and only “…
Communication and empathy are important for disability advocates
As the carer of my husband, Jared, who has hemophilia B and a seizure disorder, I’ve realized the importance of communication, understanding, and empathy. Focusing on these values helps us mature in our…
