What I love most about my partner, who has hemophilia
February is traditionally known as the month of love. Yet while Valentine’s Day is over, the act of appreciating loved ones knows no time or place. My husband, Jared, and I have been together…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
Say it with me: Disability is not a bad word
When people talk about hemophilia, some deliberately avoid calling it a disability. Instead, they’ll say “a medical condition” or “a health challenge,” as if disability were a negative label. Some who embrace the…
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Meeting another ‘HemoWife’ was surprising and enlightening
Last month, I had the pleasure of meeting another “HemoWife” at an event organized by the hemophilia organization that my husband, Jared, is involved with. Her name is Anne, and she’s married…
Why companies should hire more people with disabilities
Hello, hiring managers and human resources (HR) professionals! I’m writing this column to you, as the spouse of a person with disability (PWD). My husband, Jared, has severe hemophilia B and a seizure…
There’s a Right Way to Get Tattoos and Piercings With Hemophilia
Tattoos and piercings are artistically and sociologically significant in cultures across the globe. Throughout history, people have held varying opinions about each. But now that we’re a more global community, these skin-deep forms of…
New Thoughts and Perspectives About Life Upon Turning 30
My husband and I have always found ourselves living in between places. The first apartment we moved to was in a hub between three cities. Now we live on the border between…
An Unexpected Ankle Bleed Changed Our New Year’s Plans
Our New Year’s didn’t go as planned this year. My husband, Jared, our daughter, Cittie, and I were supposed to book a room for a staycation and then go out to the city center…
Looking Back at the Past 3 Years, What Will Next Year Bring?
With 2022 soon coming to a close, I can’t help but wonder what kind of year is going to take its place. So much has happened in the past three years, since my daughter,…
Taking Care of Plants Helps Me Manage Stress and Anxiety
I recently bought an unexpectedly large number of indoor plants. After previously having just one living room plant and a dying cactus, I suddenly had an epiphany about redecorating with multiple houseplants. I managed…
How Stoicism Helps My Husband Live Happily With His Constraints
I’ve been reading quite a bit of philosophy in my free time lately. Right now I’m reading the works of Seneca, a first-century Stoic philosopher. I’ve always been interested in Stoic philosophy and its…
A Holiday Gift List for Your Loved One With Hemophilia
With the holiday season fast approaching, many of us are clamoring to buy gifts for the people we hold dear. But it can be hard to find gifts even for those closest to us.
Korean TV Drama Offers Much-needed Disability Representation
Lately, I’ve been binge-watching the Korean TV drama “Extraordinary Attorney Woo.” It tells the story of a young lawyer with autism and the challenges she encounters (and does her best to overcome)…
My Husband’s Hemophilia Helps Me Better Handle Disappointment
I’ve always had a hard time handling disappointment. I grew up labeled a high achiever and was accustomed to meeting high expectations. I feared disappointing other people, or feeling that my best efforts just…
