How my husband with hemophilia supports me in our marriage
I recently had the pleasure of watching the “Barbie” movie with my husband and daughter. The experience not only provided us with enjoyable family time, but also left a lasting impact on me.
HemoWife — Allyx Formalejo
Allyx Formalejo, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
5 things I’m grateful for in our life with hemophilia
Some days it’s easy to see the cracks in our family’s situation — the unpredictable costs, the logistics of keeping medication on hand, the mental load of being a partner to someone with…
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Body piercings help me relate to my husband’s life with hemophilia
The piercing bug has bitten me again! After watching TikTok videos of teens and young adults with unconventional piercings, I decided to get a few more myself: a nose (septum) piercing, a…
Reflecting on marriage goals, identity, and chronic illness
I recently watched a video by a feminist content creator that struck a chord with me. She discussed women’s empowerment and the importance of not letting our entire life revolve around our partners.
3 things to let go of when your spouse has a bleeding episode
Modern psychology often emphasizes the importance of letting go. In a world constantly pushing us to hold on tightly, learning to let go can be surprisingly liberating. As I get older, I’m realizing…
Finding work can be challenging for my husband, who has hemophilia
My husband, Jared, is a capable person. He has a degree in business management and excelled in elementary and high school, consistently ranking at the top of his class. He’s an accomplished swimmer, an…
Finding balance in relationships can be difficult with chronic illness
My husband, Jared, and I have a great connection. In the nine years we’ve been together — five as a married couple — we’ve never run out of things to say. Every day brings…
What if my partner’s bleeding episode is his fault?
When a spouse or partner has a bleeding disorder like hemophilia, occasionally there may be situations that make us wonder if they are at fault for an injury they’re battling. Perhaps they…
When saving the best for last is helpful — and when it isn’t
“Save the best for last” has been one of my major life philosophies since childhood. Growing up, I’d hoard beautiful pens, colored pencil sets, and other art materials. I’d use the cheap ones first…
How growing up with a chronically ill parent has benefited our daughter
My 4-year-old daughter, Cittie, recently invented a song about her dad. It’s sung to a tune that’s quite popular in children’s short videos, with the words “Daddy is a bleedy boy.” When my husband,…
How my husband with hemophilia is conquering his fear of eating fish
My husband, Jared, is an avid eater. He’s especially fond of meaty dishes like pizza, barbecue, and steaks. He’d never pass up the chance to try a new restaurant, unique meal, or a different…
Hearing pop songs through the prism of living with hemophilia
The power of music cannot be underestimated. Its universality has the ability to connect people across places and cultures. Many people also find music healing. They can find solace in lyrics and melodies that…
How caregivers can respond when patients take their pain out on us
Pain can alter people’s behavior, causing them to act out in unusual ways. People experiencing a severe degree of pain may hurt others emotionally or physically, often without meaning to. They might say…
