Owing to conflicting market exclusivity rights, the U.S. Food and Drug Administration (FDA) has partially rescinded its decision to approve BeneFIX and Ixinity for additional indications both therapies received last year for the treatment of hemophilia B, according to the National Hemophilia Foundation. Pfizer’s BeneFIX and…

Immunizations are sometimes tricky when a child has a bleeding disorder. The shots can cause bruising and swelling at the injection site, or even a muscle bleed. Each person is different, but nevertheless, precautions must be taken. When my children needed immunizations, I always gave them a dose of…

I love to watch hummingbirds. They’re lightning-fast as they move from flower to flower, feasting on nectar and insects. When they come to the feeder outside my window, their chirps and hums are different from those of other birds. I’m intrigued that the hummingbirds go into a state…

My husband, Jared, and I attended our first international concert together this month when we saw the American rock band Fall Out Boy at the Araneta Coliseum in Quezon City, Philippines. This concert was a milestone for both of us and truly one for the books. I’ve dreamed…

AvevoRx is entering the bleeding disorders market with a program aimed at addressing the dearth of accessible, personalized specialty infusion and pharmacy services for people with hemophilia and related conditions. The North Carolina-based company, founded last year, provides specialty infusion pharmacy services in several states to at-home patients who have…

When your child is little and isn’t able to verbalize pain, you find yourself worrying constantly that you are missing something. “He’s crying, is he having a bleed? Or does he need a diaper change?” You must be the one who identifies why your little one is in distress.

For years, long periods in the hospital proved challenging for my family. My youngest son, Caeleb, required many extended stays because of breakthrough bleeding episodes related to hemophilia. We often tried to find ways to break the monotony of the sounds of medical machinery that frequently rang and…

My sons reacted to hemophilia treatment in entirely different ways. My oldest son, Julian, had one port-a-cath, while my youngest son, Caeleb, had eight. Julian had two surgeries, one to place the port and the other to remove it, while Caeleb required 16 surgeries for port placements and removals.

I sit waiting for my youngest son to complete an MRI of his right ankle. He has been overwhelmed with pain from constant breakthrough bleeding episodes. For a while, recombinant factor VIII was working to treat his hemophilia and we were euphoric, but we soon learned that internal…

The holiday season is upon us. Often, we have our meal around a table with people we love, and we give thanks for one another’s company. The holidays are all about rituals — preparing feasts, gathering to exchange gifts, and focusing on the things that unite us. Year after…