Conditions like hemophilia and von Willebrand disease are thought to affect more than 3 million U.S. residents. Across the country, patients, caregivers, advocates, and other supporters are coming together this month for Bleeding Disorders Awareness Month (BDAM) to participate in conversations and webinars, and share information about key community…

I’ve been sick these past few days with gastrointestinal issues. What began as a wave of nausea turned into an entire morning of vomiting, followed by a seemingly endless bout of painful diarrhea. I was confined to my bed, unable to get any work done, and subsisting on a diet…

We’ve just entered the season of Lent. This particular time in the church calendar is the 40 days before Easter. The goal is to remember divine deliverance and to prepare our hearts and minds for the joy of Easter. As a pastor in the Christian tradition, I encourage parishioners…

Hello, hiring managers and human resources (HR) professionals! I’m writing this column to you, as the spouse of a person with disability (PWD). My husband, Jared, has severe hemophilia B and a seizure disorder, and we worked together at the same company for a year. I’ve also seen him…

When my youngest son, Caeleb, now 17, was 11 months old, he had a bleeding episode that shook us to our core. We’d recently moved to New Mexico from Houston and didn’t yet know our new medical team. Because my wife, Cazandra, had promised to play oboe at…

After worship on Sunday, the church I serve as pastor has a fellowship hour, when everyone comes together, enjoys coffee and snacks, and visits with one another. It’s a beautiful time and a great way to start the week. Snacks and goodies are a treat — and then there’s the…

Given all the mass shootings, economic uncertainty, and contentious political discourse happening in the United States right now, it’s easy to see that our country is in a state of chaos. Yet, I continue to draw hope from the words of Maya Angelou: “When you know better, do…

One of my favorite programs is CBS “Sunday Morning,” which my husband and I record and watch on Sunday afternoons. One of its recent stories brought me to tears. At Glen Lake Elementary in Hopkins, Minnesota, several students have physical disabilities. The children in Betsy Julien’s fifth grade class…

My husband and I have always found ourselves living in between places. The first apartment we moved to was in a hub between three cities. Now we live on the border between two cities. Just a few streets away from us is a sign that says, “Thank…

I recently read a story about a family who drove to Nevada from Florida, hoping to get home for Christmas. Their flights had been canceled several times, so instead of spending the holiday at home with family, they spent several days on the road. Unexpected airline issues thwarted their plans.