The U.S. Food and Drug Administration (FDA) has approved an update to the label of Alprolix, based on long-term efficacy and safety data from two Phase 3 studies, the B-YOND extension trial and the Kids B-LONG pediatric study, manufacturer Bioverativ announced. This label extension, which adds pediatric data, further supports…

It’s normal to come across inconveniences in daily life. Imagine being in the following scenarios: You’re filling out an important document with a pen when it runs out of ink midsentence. It’s a typical morning and you’re on your regular train to work when it breaks down out of…

May is a busy month — with end of school year parties and graduations, the time flies as summer begins. This month is significant for another reason: May is Mental Health Month. It is wonderful that our society talks openly about mental health issues. When I was growing up,…

Today, I received a phone call from my dad. He wanted to talk to me about safekeeping some of his finances, as he had been planning to travel to our hometown to sort out some property-related matters. Since my mom passed away in June, he has been focused on getting…

Scientists have improved protein drugs using an approach based on “ancestral sequence reconstruction,” or ASR. The newly established strategy promises to enhance the ability to engineer more efficient and durable proteins, as in the case of human factor VIII for hemophilia. The study “Enhancing the pharmaceutical properties of protein drugs by…

Summer is upon us. Our kids have big plans: sleeping in, watching television, playing video games, sleepovers, vacations, and summer camp. From church camp to athletic and band camp, the summer is filled with opportunities. The bleeding disorder community also has summer camps across the country from June to…

A name is not mere letters on paper or a screen, but a way to proclaim our existence. What we call ourselves lets the world know who we are. My name, Joe Keith, comes from my great-uncle (my grandfather’s brother). I take a great deal of pride in carrying on…

The unimaginable has happened. My youngest son, Caeleb, had his port removed. Of course, when someone with a bleeding disorder has a port, it’s usually not forever, so why is it a big deal for my 13-year-old son? This was his seventh port. He has had…

My family has rented an Airbnb for a week in Las Cruces, New Mexico. We decided to take a few days for ourselves before turning our attention to the reason for our trip: Through Friday, my wife and I, both pastors, are participating in the yearly meeting of the…

Stop the Bleeding! is a comedy web series set at a fictional non-profit organization. The award-winning series features various members of the dysfunctional organization and the conveniently placed hemophilia treatment center (HTC) next door in a mockumentary style. MORE: Six of the best mobile apps for managing…