My husband, Jared, and I are in an interesting stage of our parenting journey. Our daughter, who is almost 4, will be going to preschool soon, but for now, she spends almost every day with us at home. She has a rather introverted temperament, so most of the…

Two new gene therapy vectors designed for liver diseases show promising effects in a mouse model of hemophilia B, according to a recent study. The study, “Adeno-associated virus serotype 2 capsid variants for improved liver-directed gene therapy,” was published in Hepatology. Hemophilia B is caused…

On Monday, the preschool at my church celebrated Halloween, complete with little goblins, ghosts, and other assorted creatures. The children bragged about their costumes, saying, “Look, Pastor Joe, I’m a princess. Look, Pastor Joe, I’m a ferocious Samurai warrior.” They looked terrific, and I asked them if they wanted a…

Growing up in Texas meant Friday night football games. It’s a religion there. As a girl in elementary school, I’d go with my family to games — not so much to watch football as to see the halftime show. But I found myself enamored with the cheerleaders. They were athletic…

Health Canada has expanded its approval of Rebinyn (nonacog beta pegol) as a routine preventive treatment for bleeding episodes in hemophilia B to patients under age 18. The therapy, developed and marketed by Novo Nordisk, is now available to all hemophilia B patients as a preventive (prophylactic)…

Last week, I wrote about the bond I formed immediately with my oldest son, Julian. Caeleb, my youngest son, recently reminded me of the unique bond he and I share. Toward the end of her third trimester, my wife, Cazandra, started to experience complications, so her medical team admitted…

My husband, Jared, gets a lot of bruises. Not because he gets into brawls a lot, and most certainly not because we fight (although we like to troll people with these possibilities just for fun — dark humor, we know). His quick bruising is because he has severe…

Weeds. They’re inevitable. In the desert of New Mexico, where we live, fighting weeds after an active monsoon season means pulling them from xeriscape yards. The yard rocks make it difficult to eradicate weeds. It’s a tireless task to complete in the desert heat, especially when that active monsoon…

Recently, I opened an email from a company inviting me to share my insights regarding bleeding disorders and how my family handles the struggles of chronic illness. Before my sons were born, I think I would’ve hit the delete button without giving a similar invitation a second thought. But…

My son Caeleb participated in a marching band competition this past Saturday. He plays the keyboard in the pit so that he doesn’t have to move around on the field, which would cause intense pain. Many years of internal bleeding left no cartilage in my son’s damaged right…