Teaching hemophilia patients who have undergone joint replacement surgery how to administer their intravenous (IV) self-infusions in sterility, can decrease the rate of infections post-surgery significantly, a six-year education program shows. The program outcomes will be shared at the upcoming World Federation of Hemophilia 2018 World Congress May 20-24…

The following is a group activity I like to do in some of the workshops and presentations that I give. Each person has 16 slips of paper and I ask them to write something on each slip. One category is the four most important people in their lives…

Last weekend, our daughter graduated from kindergarten. As she proudly crossed the stage, I found myself reflecting on how far we’ve come — not just in terms of our child’s academics, but as a family living with hemophilia. As she received her diploma and later danced through musical numbers…

Last weekend, I had an experience I had long dreamed about. This experience had been on my list of “things to achieve” for several years since I met my husband, Jared, who lives with hemophilia. Many women my age dream of treating themselves to a huge shopping…

Conditions like hemophilia and von Willebrand disease are thought to affect more than 3 million U.S. residents. Across the country, patients, caregivers, advocates, and other supporters are coming together this month for Bleeding Disorders Awareness Month (BDAM) to participate in conversations and webinars, and share information about key community…

My husband, Jared, and I are navigating another significant life transition. Our daughter, Cittie, is now on her second week of kindergarten, which marks the official start of formal schooling here in the Philippines. This transition is even more pronounced because we’ve moved her from a traditional school to a…

I used to be great about determining if my now 14-year-old son Caeleb was having a bleed. Identifying the symptoms of a joint bleed was second nature to me. Swelling of the joint, warmth to the touch, redness in the area, and pain are a few of the telltale signs…

A delivery method using nanotubes with a spear-like shape may open new avenues for safer, faster, and more cost-effective gene therapies for several genetic diseases, including hemophilia, according to a study. The study, “Precision-Guided Nanospears for Targeted and High-Throughput Intracellular Gene Delivery,” was recently published in the…

My family was involved in a car accident. An afternoon to the movies turned into phone calls to the police, 911, and the insurance company. Left behind by a reckless driver, I am grateful that two witnesses came forward. Having never been in an accident, I hope this is my…

As a pastor, I always remind my parishioners that it’s not enough to profess one’s faith. A person must live out the tenets of what they believe. In other words, talk is cheap. It doesn’t do a person any good to shout their love for God on Sunday and act…