When I was younger, I drew up several vision boards outlining my dream life. I simply listed my goals and the age by which I wanted to achieve them. I remember being 10 years old and writing in my diary with such strong conviction that I needed to own…
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About seven years ago, my youngest son experienced the worst of the worst regarding hemophilia. My boy missed most of his second-grade year — 128 of approximately 180 instructional days — because of continuous breakthrough bleeding episodes followed by extended hospital stays. Unfortunately, we could not get ahead of his…
Sometimes, conversations lead me to reveal that my boys have hemophilia. It is usually a harmless conversation without any agenda. However, I am not always sure how to reply when someone tells me how sorry they are to hear that my boys have an illness. It often depends on…
Needle. Vein. My eyes shift back and forth. Needle. Vein. Which vein is large enough to hit without blowing, but small enough to anchor well? Tourniquet, needle, vein, syringe. I hate infusing. I HATE this. Well, tonight I definitely hate this. Maybe I haven’t eaten enough, or perhaps it’s due…
InSourceRx is partnering with the National Hemophilia Foundation (NHF) to help those with inheritable blood disorders, such as hemophilia, better afford medications. InSourceRx is a pharmacy discount card company that teams up with nonprofit and patient advocacy organizations to provide discounts for essential medicines and supplies. Blood…
Spiral notebooks, pencils, glue sticks, and highlighters make my heart happy. These items signal the beginning of the school year. I have fond memories of buying new pencil boxes and the perfect backpacks for my sons. I always look forward to taking them shopping for school supplies. Now that my…
It was a celebratory day for the Philippines on July 26 when female powerlifter Hidilyn Diaz won gold at the Tokyo Olympics. It was her country’s first ever Olympic gold medal. I feel proud as a Filipino that our country has earned such a high honor. But for more…
Many years ago, when hemophilia came into my family’s life, rearing its ugly head like a lion ready to devour its prey, we held on to anything we could. As the chaos of chronic illness overtook our lives, my wife and I made plans to help our children manage their…
As a parent, it is my responsibility to help my sons become productive, compassionate, caring individuals. My oldest son, Julian, is 25 and working to complete his college degree. He is on the cusp of transitioning to a new phase in life. In less than a year, he will…
When my youngest son was 4, he wanted to play baseball. My nerves were shaky as I took him to register for the fall season. I hoped he would enjoy playing the sport. When the first game of the season rolled around, my wife and I sat in the bleachers,…