Showing 2831 results for "hemophilia A"

Dreams of a Better Future

My husband, Jared, and I are at a point in our lives where our careers have taken on greater significance. It seems like just yesterday when we were college students eager to graduate and experience life, curious about the mysteries that the future might hold. We were figuring out our…

Performing My First Self-infusion Was Empowering

With so many injuries lately, possibly because of a lack of exercise, I found it necessary to finally learn the ropes of self-infusion. Self-infusion of critical factor is important for me to prevent and treat bleeding episodes. As much as I have wanted to learn the craft, I…

Here’s a Thumbs-up to Taking Back Control

You don’t have to look far to find people who are afraid of needles. There is something to be said about sharp, pointy things digging into your flesh. The process is not fun, and we endure it knowing that the medicine will fulfill its purpose. We hope to feel better…

Adulting Is Hard, Especially with Chronic Illness

Many in my millennial generation dread adulting. The idea of surviving in the real world without the comfort of a family safety net is daunting. Young adults who are barely scraping by can feel alone and isolated. I was thrust into the world of adulting fairly early. In our mid-20s,…

Innovation Required: Taking Care on the Road

People with bleeding disorders face a variety of challenges. Healthcare access is a constant concern and covers myriad issues, including political and financial stability and regulatory and provider awareness. Most of us spend a fair amount of time educating and advocating for these issues. One thing we don’t often talk…

We Never Stop Learning

I often say that I wish there were a course titled “How to Be a Good Parent.” You would graduate with a diploma and the confidence that your book smarts would translate into perfect child-rearing. Nothing would hold you back. Unfortunately, that’s not real life. There might be training opportunities,…

Children Hear More Than You Think

When my oldest son was diagnosed with hemophilia, it did not take long for my husband and I to start researching. More than anything I wanted connection. We found our local bleeding disorder chapter in Houston and began the journey with these amazing people. I was excited to…