Showing 2830 results for "hemophilia A"

This Is Way Beyond My Understanding

My youngest son, wife, and I just returned from an appointment with our hematologist concerning plans for treatment. In the twinkling of an eye, our worlds changed. We will move to a new procedure requiring an injection given every two weeks. How could this be? Wasn’t it last…

It’s Not Our Fault!

Those of us who either have caregivers or serve as caregivers for others with chronic illness know what it is like to feel as if we are the cause of our loved one’s affliction. We may think that we said or did something wrong, and because of these…

Hi, Baby! My Thoughts on Becoming a Father

Editor’s note: After this column was written, Jared and his wife welcomed a healthy baby girl, Melanie Citrine, on Jan. 18. Congratulations! My wife is 38 weeks pregnant. I’ll soon be a father. That fact is becoming more real to me every day. I have many questions: Will I be…

Resolutions to Keep All Year Round

We are in the middle of January and some of the resolutions we promised to keep just a couple of weeks ago already seem to be fading away. Our intentions were wonderful and our commitment admirable. So what happened to our fortitude? Did something act as a roadblock…

What Is in a Name?

Many of us have names that represent legacies and traditions handed down from generations past. My mom named me after my grandfather’s brother who died when he was 11. I often think of him and wonder if I carried on the family name with pride. Would he have been…

My Wishes for the New Year

I often find myself thinking back to the advice my parents gave me over the years. Of course, I considered it “nagging” rather than advice at the time, but the older I get, the more I realize my parents were two of the smartest people I’ve ever known.

When I Have Nothing Left to Give

I’ve spent several nights in the hospital with my son, and I play tag with my wife. It is her turn to trade duties with me. I leave the medical center and head straight to the church, lead worship, eat a meal, and return to the hospital to…

Finding Meaning in Chronic Illness

I was born into this world with hemophilia. As a child, it was a reality I had to face, and I have no one to blame for my misfortune. Did I want to be born? Did my parents intend that I have a different life? No. It would be wrong…

Minimalism, Filipinos, and Disability

I’ve been pondering the minimalism movement a lot lately. This is because I recently found myself with more than a dozen boxes from my childhood home, and along with these came a sense of responsibility to organize the contents inside of them. As my husband and I unpacked the…