Climate change has been a hot topic in our circles lately. We feel it very much in the Philippines, where hot summers in the months of April and May have quickly turned into a season of strong typhoons and dangerous floods. Recently, a major typhoon hit the province of…

My husband, Jared, and I are in an interesting stage of our parenting journey. Our daughter, who is almost 4, will be going to preschool soon, but for now, she spends almost every day with us at home. She has a rather introverted temperament, so most of the…

Raising children is like building a house. For those of us who manage chronic illness and other disorders, our floor plans may look a little different, but at the end of the day, we all want our loved ones to be strong and sturdy, and ready to face life’s…

Last week I hit a significant personal milestone. In order to keep myself mobile and healthy, I ride a recumbent indoor bike — a lot! I used to ride over 100 miles a week. Riding my bike has kept me and my joints healthy. It’s also helped…

To say my youngest son, Caeleb, is excited to start his second year at the University of New Mexico is an understatement. He lived at home during his freshman year, but next month, he’ll move into a dormitory. He can’t wait to spread his wings and live on his own(ish).

Recently, I opened an email from a company inviting me to share my insights regarding bleeding disorders and how my family handles the struggles of chronic illness. Before my sons were born, I think I would’ve hit the delete button without giving a similar invitation a second thought. But…

I recently received an intriguing piece of jewelry in the mail. It’s a prototype of a design I hope to sell someday. But I loved it so much that I wanted one for myself. The design is rather goth-themed, featuring a coffin-cut black onyx gem in the center flanked…

My oldest son, Julian, recently approached me and asked, “Dad, can you play this song for me on the piano? I have to post a singing audition tonight.” Panic filled my body. I responded, “Oh, Julian, this song has too many fast chord changes.” He walked away, trying to find…

It isn’t that I can’t be alone. I am an introvert. As such, I can self-entertain for hours. I like spending time with my own company. I find many ways to occupy my time. Hobbies abound — I write, knit, research genealogy, geocache, record podcasts,…

Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest.    Two entries in November’s “Disorder: The Rare Disease Film Festival” will focus on what siblings go through, according to the San Francisco festival’s co-founder,…