Over the past couple of weeks, my husband, Jared, and I have been fully occupied with home improvements. We did a complete revamp of our bedroom, from repainting the walls to changing our old and deteriorating bed. We also replaced other furniture that was falling apart or no longer…

Mobility problems, bleeding, pain, and uncertainly in daily life are the biggest challenges people with hemophilia are facing, according to a survey from six central European countries. Additionally, while most respondents, including caregivers, felt well informed on hemophilia, they continue to seek further education on the condition and new…

Severe hemophilia B patients receiving prophylactic, or preventive treatment with factor IX face a significant financial and personal burden, according to data from two U.S. population-based medical databases. These findings were reported in a study, “Clinical, humanistic, and economic burden of severe hemophilia B in the United States:…