The U.S. Food and Drug Administration (FDA) has approved Expression Therapeutics‘ request to open a Phase 1 trial of ET3, an investigational gene therapy for people with hemophilia A. The decision followed a review of the company’s investigational new drug application (IND) requesting clearance of ET3…

I do love Thanksgiving season. Families gather, food is shared, and quality time is priceless. But not everyone enjoys the holidays. In them, we’re encouraged to live a life filled with thanks, a life of thanksliving. Ugh. Yes, it’s a nice thought, but sometimes it’s enough to distract…

SARS-CoV-2, the virus that causes COVID-19, might have triggered acquired hemophilia A (AHA) in a 65-year-old man with a clinical history of autoimmune thyroid disease, a U.S. case study reports. This case suggests that COVID-19 infection should be considered when looking for potential causes of AHA. The study, “…

Psychological distress triggers microscopic changes in regions of hemophiliac children’s brains that deal with emotions and cognition — and the changes show up before abnormal results on neuropsychiatric tests, researchers discovered. The team said larger studies are needed to confirm the links they found between brain changes, the stage of the…

My older son came to visit us for the first time since March 2020. Although we talk almost every day, there is nothing like seeing him in person. I didn’t realize how much my soul craved communion with him. We laughed and talked about how good it is to have…

Last Sunday, I preached about the idea of faith and how it informs our lives as we look toward the future. I drew from scripture to define my terms when speaking about the meaning of faith. According to the text, “Faith is the reality of what we hope for, the…

Recently, our microwave broke beyond repair, and it made me realize how much we rely on certain appliances to make life easier. In a household where hemophilia is a part of daily life, convenience isn’t just about comfort. It’s about minimizing physical strain and reducing risks. Many household chores…

Swedish Orphan Biovitrum (Sobi) announced the successful enrollment of the first hemophilia A patient in the company’s ReITIrate clinical trial. The Phase 4 study (NCT03103542), sponsored in collaboration with Bioverativ Therapeutics, is actively recruiting participants who have developed inhibitors and who have failed to respond to other therapies. Researchers will…

The past three weeks have been busy ones in the life of my church family. Since the middle of last month, I’ve performed four funerals and a wedding and led a critical church conference. These events have had emotional consequences. My anxiety level continues to be high as I navigate…