Cellphones are a good way for hemophiliacs receiving care at home to relay information that doctors need to stay on top of their treatment. But a lot of patients have yet to embrace the service — and a recent online survey of 181 hemophiliacs shed some light on why. Spanish…

The severity of a person’s hemophilia depends on the amount of clotting factor they have in their blood. Generally speaking, the disease is considered mild, moderate or severe, although around 70 percent of people living with the disease have the severe form. MORE: Five tips for healthy living with hemophilia.

On Monday, May 22 at 9:59am, Colorado-based mountaineer Chris Bombardier became the first man with hemophilia to reach the summit of Mount Everest. MORE: Man with hemophilia is scaling Mount Everest. According to his Facebook page Adventures of a Hemophiliac, Chris dedicated his achievement to all…

Chris Bombardier, the author of the “Adventures of a Hemophiliac” blog, has become the first person with hemophilia to climb Mount Everest, the world’s highest peak. That achievement on May 22 means the 31-year-old Denver native has only one mountain to go toward his goal of scaling the tallest peaks…

Life with hemophilia can be challenging but with appropriate treatment and preventative self-care, many people living with the disease can live fairly normal lives. To help prevent bleeds and other complications, we’ve put together a list of six self-care tips for people living with hemophilia. MORE: Ten benefits of having…

The Phase 1/2 trial looking at the Factor VIII protein SHP656 as a long-acting therapeutic to treat hemophilia A did not meet a pre-defined once-weekly dosing criterion, according to Xenetic Biosciences and Shire, which are jointly developing the drug. The study demonstrated SHP656’s efficacy and pharmacokinetic data (the drug’s behavior once…

Hemophilia is a rare blood condition where people do not have the clotting factor which enables their blood to clot when bleeding. It’s an inherited disease that’s usually passed from mother to son. It’s also a disease that’s been prevalent in European royal families. MORE: A brief history of hemophilia…

Bob Byrne from Northern California has severe hemophilia A. As a result of bad bleeds when he was younger, Byrne now suffers from arthritis and finds getting around difficult. Without anyone who can offer him care on a daily basis, he decided to get a service dog. MORE: Ten benefits of having…

The National Organization for Rare Disorders (NORD) has recognized pharmaceutical company CSL Behring for pioneering Idelvion (rIX-FP), its therapeutic medicine against hemophilia B. “We are proud to present the team at CSL Behring with a 2017 Industry Innovation Award for the important work they are doing to address the needs of patients…

Chris Bombardier may have been born with severe hemophilia B but he hasn’t let it stop him from setting his sights high — literally. MORE: Five tips for living healthily with hemophilia. Bombardier is currently at Camp 3 of Mount Everest. He’s getting ready to climb the summit of the world’s highest…