Note: This story was updated June 11, 2025, to correct the number of weeks the woman in the case study was pregnant to 36. A woman carrying a hemophilia B genetic mutation received regular factor IX (FIX) replacement therapy during pregnancy and successfully delivered her baby with no severe…
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I tell my sons that I love them every day and at the end of every conversation. I can count on one hand the number of days I haven’t spoken to them. However, sometimes I fear my words fall on deaf ears, as my pronouncement of devotion may sound repetitive…
Eptacog beta was safe and almost 100% effective at stopping bleeds within 24 hours in boys ages 12 and younger with hemophilia A or B, according to final data from the Phase 3 PERSEPT 2 trial. According to researchers, this bypass agent may be an important option for…
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This month, I attended One Drop, a “rare bleeding disorders consortium” hosted by Comprehensive Health Education Services (CHES) in Tampa, Florida. The event supported individuals and families with deficiencies of factor I, II, V, VII, X, XI, XIII as well as rare platelet disorders, such as Glanzmann thrombasthenia. Janet Brewer,…
As an expectant mother, I dreamed about my son’s future. I imagined the sound of his voice, the daily rituals we would create together, and the way I’d simply hold and love him with every part of my being. When my first son, Julian, came into the world, my…
Obizur (susoctocog alfa), a pig-derived replacement therapy, can be used to prevent bleeding in people with acquired hemophilia A who need to undergo surgery, a new case report highlights. The report, “Successful perioperative prophylaxis with susoctocog alfa in a patient with acquired haemophilia A: A…
“I know, I know” is repeated in my home numerous times daily. When I hear these words from my 17-year-old son, Caeleb, I want to run away screaming. No, you don’t know! The teenage years are not my favorite. Was I this way when I was a teenager? Unfortunately,…
The first participant was dosed with the investigational therapy marstacimab in a Phase 3 clinical trial — still recruiting eligible patients across the globe — in adolescents and adults with severe hemophilia A or B. Pfizer‘s marstacimab (PF‐06741086) is a human antibody that blocks a…
Recently, I took my son to the dentist to have a couple of cavities filled. I knew that the dentist had reviewed my boy’s medical issues with our treatment center, so I felt assured about the procedure. He is an excellent doctor and if I had any doubts…