The efficacy and safety profiles of preventive treatment with Hemlibra (emicizumab-KXWH) are not affected by age or the presence of some simultaneous health conditions, that is, comorbidities, in older people with hemophilia A. The findings are the result of a post hoc analysis of pooled data from Phase…
Picture this: I’ve finally settled down for some peace and quiet with my wife. I’m holding a nice glass of wine, and she’s sitting in her favorite rocking chair. Our two boys have found refuge in their bedrooms, and all seems right in the world. I turn to Cazandra…
My youngest son, Caeleb, recently graduated from high school and, at 18, is legally recognized as an adult. This milestone brings a host of new responsibilities and rights: He can vote, buy and sell property, sue or be sued, and enter into binding contracts. Despite all our preparation for…
More than half the adults with hemophilia A in the Phase 3 GENEr8-1 clinical trial remain completely free of bleeds needing treatment, four years after a single dose of the gene therapy Roctavian (valoctocogene roxaparvovec-rvox). Also, activity levels of factor VIII (FVIII), the faulty clotting protein in hemophilia…
I cannot stress enough how profoundly heavy menstrual bleeding can impact everyday life. Imagine needing to find a bathroom nearly every hour, seven days a week. It can make certain career choices extremely challenging and disrupt daily activities, including school and athletics. When I was young, I didn’t realize my…
For the last two weeks, my family has celebrated a significant milestone for my youngest son, Caeleb. He graduated high school and now looks forward to life as a college freshman. My boy is excited about this new adventure. While I’m grateful that he celebrated a mountaintop experience, I…
Good mental health is crucial for caregivers of people with chronic illnesses. As a wife to someone with severe hemophilia B and epilepsy, I’ve seen firsthand how mental health matters to both patient and caregiver. I have to balance my husband’s needs with my own physical and…
Equipping yourself with knowledge is crucial for advocating for your hemophilia B healthcare, especially if you want to ask your doctor about trying a new treatment like gene therapy.
A pastor in the United Methodist Church agrees to participate in an itinerant system, in which a governing body, the Cabinet, moves clergy to where their gifts and graces are needed. I’m serving my fourth church at the First United Methodist Church of Belen, New Mexico, where…
Last month, my husband, Jared, and I enrolled our daughter in a new school. She’ll start kindergarten in a few months, which marks the beginning of mandatory schooling here in the Philippines. Although her current school is decent and she’s a beloved student there, we felt she might thrive more…
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