I walked into my home and heard my oldest son, Julian, having a heated conversation over the phone. He hung up and threw his phone down in absolute frustration. “What’s wrong?” I asked. He said, “How did you and Mom navigate hemophilia treatment with our health insurance company?…

The U.S. Food and Drug Administration (FDA) has approved Labcorp’s companion diagnostic test for detecting preexisting antibodies against the viral carrier that’s used in Beqvez (fidanacogene elaparvovec-dzkt), Pfizer’s recently approved gene therapy for hemophilia B. A negative result on an FDA-cleared test is needed to be eligible…

I recently came across a thought-provoking video featuring Betty Reid Soskin, a remarkable 102-year-old woman with a unique perspective on marriage. Throughout her long life, Soskin has embraced various roles, including daughter, wife, mother, casual songwriter, and, perhaps most notably, a ranger with the National Park Service until…

I’ve generally had an all-or-nothing mindset when it comes to working out. In the past, anything under 30 minutes would feel like a waste of time. The problem with my fitness regimen has been sustainability and consistency. However, I’ve found that starting slowly and gradually building up has been effective…

“Merrily We Roll Along” is my new favorite musical. The plot of this Stephen Sondheim show centers on three college friends and the disintegration of their relationship. What’s interesting is that the play is in reverse chronological order; we witness the final destruction in the first scene, with…

My favorite band, Fall Out Boy, has a song titled “The Kintsugi Kid (Ten Years).” Now that I think of it, my husband, Jared, and I celebrate 10 years together this April. In my eyes, he’s the “OG” Kintsugi Kid. Jared once wrote an article for…

When my oldest son, Julian, moved back home, he knew that I, in my Methodist minister role, needed a couple of singers to help lead a 9 a.m. worship gathering. I debated whether to ask him if he could help me out, but before I could utter a word, he…

As a “HemoWife,” I’ve become intimately acquainted with the intricate dance between physical and mental health. In recent columns, I’ve delved into the journey of navigating my husband Jared’s hemophilia alongside my own anxieties and explained how the two are connected. But mental and physical health are related…

My house is in a state of chaos. Julian, my oldest son, leaves for a summer job in the Appalachian Mountains of North Carolina on May 1, while Caeleb, my youngest son, graduates high school on May 18. My wife, Cazandra, and I feel the unspoken tension that both…

Added to steroids, rituximab seems to be as safe and effective as cyclophosphamide therapy at controlling bleeds and wiping out antibodies against clotting factor VIII (FVIII) in adults with newly diagnosed acquired hemophilia A (AHA), according to a Phase 3 clinical trial. However, data from the CREHA…