When our oldest son, Julian, was about 6 years old, the hemophilia treatment center (HTC) in Houston invited my wife, Cazandra, and me to participate in a program that changed our lives. It was called Parents Empowering Parents, better known as PEP in the bleeding disorders community. Created by social…

Novalis Biotechnology is supporting a €1.4 million ($1.64 million) investment in Enzyre to finalize the development of a handheld diagnostic device to monitor blood coagulation status in people with hemophilia, and to secure regulatory approval. The funding comes as a Corona Bridge Loan, granted by the…

Hemophilia is an inherited disease that prevents blood from clotting, a process that’s required to stop bleeding. According to the Hemophilia Federation of America, there are various complications that can arise from having a bleeding disorder like hemophilia. MORE: What to know about hemophilia symptoms.  Joint damage: One of the most…

Everyone experiences anxiety, yet not necessarily at the same level. When getting on an airplane, making a doctor appointment, or otherwise triggered, the anticipation and worry about what will happen can get the best of people. Some would argue that they do not have anxiety. It’s often these people who…

I’ve been busy setting up my personal website and blog lately. So far, chronic illness and disability are two of my major themes. My husband, Jared, has hemophilia and a seizure disorder, and I see him face the challenges of being disabled every day. His conditions affect our marriage, family,…

“I’m so sorry. What can I do? I am here if you need me.” When we hear bad news about someone we love, most of us struggle to find the right words to comfort the one hurting. Sometimes, the best words are no words at all. It just…

After every storm, there’s a moment when you think the hard part is over. The winds calm, the skies clear, and you take that first deep breath of relief — only to realize the real work is just beginning: the cleanup, the repairs, and waiting for things to return to…

My youngest son Caeleb suffers from seasonal allergies. He gets severe headaches, congestion, a runny nose, watery eyes — it’s not fun. One of the telltale signs that he is genuinely sick is when he vomits from a headache; otherwise, I chalk most things up to allergies. On a Sunday…

About this time every summer, my social media feeds begin to fill with lots of smiling faces from hemophilia camps across the country. Photos showing kids pursuing myriad activities — from fishing to wall climbing to crafting — share a common theme. They are fun, relaxed kiddos doing what…

My family recently moved to Las Cruces, New Mexico. Boxes, packing paper, and tape have been a constant over the past few months. I’m grateful that my husband and sons are experienced movers. We all have a system, a rhythm to packing that we don’t even discuss. I pack…