Hemophilia patients who develop inhibitors against treatment face markedly higher healthcare costs — about three times those of other patients — and experience poorer quality of life, according to a team of scientists in Italy. Alternatives are available and should be considered for these patients, they write. The study, titled…

“Hey, Padre!” I hear those words, and all is right with the world. These words are what my eldest son calls me. I can’t remember when he started. All I know is when I hear that small phrase my pulse slows down and I remember that I am loved, and…

I am a woman who is extremely blessed. I have a roof over my head, food on the table, a little bit of money in my pocket, and two amazing sons. The best part is that I have an amazing husband to share these blessings with on this…

My wife and I sat by the pool and watched our 3-year-old super fish glide through the water. The skill he displayed with a set of floaties wrapped around his arms took our breath away. Our son became one with the water as he swam across the bright blue surface.

I am originally from Texas, so I know the meaning of the word “team.” The Lone Star State reveres sports organizations like no other place in the country. Friday nights in the fall are overwhelmed with football, marching bands, and great times to visit with friends. Everyone gathers together with…

I am a musician who has played in orchestra pits, wind ensembles, chamber groups, and orchestras. I even played antiphonal oboe one Christmas! Music is powerful. It transforms you and allows you to escape for a few hours from the regular happenings of the day. However, most people…

There are moments in life that seem to disappear, while others have burned into my memory. I can remember a moment that took place 20 years ago, and my heart rushes as though it happened only seconds ago. Sometimes that can be a good thing, but sometimes the…

Both of my sons have expressed frustration at having a bleeding disorder. After experiencing a problematic infusion, each has cried out, “I hate having hemophilia!” While they are almost 10 years apart, the same response lets me know that they are “getting it.” Sticking a needle in a child’s arm…

The National Heart, Lung and Blood Institute (NHLBI) is hosting a State of the Science Workshop on May 15-16, 2018, in Bethesda, Maryland, to include input from the hemophilia community into a coordinated strategy for future basic, translational, and clinical research. Although preregistration is closed, on-site registration…

Teaching hemophilia patients who have undergone joint replacement surgery how to administer their intravenous (IV) self-infusions in sterility, can decrease the rate of infections post-surgery significantly, a six-year education program shows. The program outcomes will be shared at the upcoming World Federation of Hemophilia 2018 World Congress May 20-24…