Most of the writing I see about mental health suggests that addressing the obstacles in your way is crucial to discovering joy. While it’s important to discuss the challenges we face in the bleeding disorders community, we must also remember to celebrate and give thanks when we conquer a mountain.
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Some of the funniest commercials are for insurance companies. Allstate’s Mayhem always makes me laugh. The GEICO Gecko is a fun, familiar character, and so are Flo from Progressive and Liberty Mutual’s LiMu Emu and Doug. But one series of commercials feels…
Hemophilia is best known for symptoms such as prolonged bleeding after an injury, easy bruising, and spontaneous bleeding into joints or muscles. Over time, repeated bleeding can also lead to less common complications. One of the rarest is the development of hemophilic pseudotumors, or benign masses caused by…
A new digital medical device, called florio HAEMO, may support more personalized care and help people with hemophilia better plan daily activities and live their normal life, a study suggests. The device helps patients and clinicians monitor real-world, real-time data on treatment and clinical outcomes, including pain, bleeding, well-being, and…
Treatment for burn injuries is usually straightforward: Cool the skin, manage the wound, control pain, and let time do the rest. That’s the version most people are familiar with. When hemophilia enters the picture, though, even a “simple” burn can quietly turn into something far more complicated. To add…
A structured rehabilitation program improved knee function, movement, and pain in people with hemophilia after total knee arthroplasty, a surgical procedure that replaces the knee joint, according to a 10-year study in China. While improvements were seen across patients with varying levels of knee mobility before surgery, those who…
Altuviiio (efanesoctocog alfa) reduced bleeding and was safe for boys and young men with severe hemophilia A, according to a recent study. Researchers also reported an increase in participants’ confidence in everyday activities and no return of neutralizing antibodies that may inhibit treatment, even in patients who are usually…
Out-of-pocket maximum: This term is used by health insurance companies to inform customers of the maximum amount they may have to pay in a year for covered medical care, excluding premiums. Once this maximum is reached, the insurance plan covers 100% of eligible medical expenses for the rest of the…
During my husband Jared’s recent hospitalization, I heard one particular sentence more times than I can count: “We’ll wait for Doc’s approval.” Jared was admitted for a burn on his hand, an injury that, on its own, often follows a fairly standard treatment path. But because he lives with…
Note: This story was updated Jan. 20, 2026, to correct data on the number of boys on preventive FIX replacement therapy at the time of the analysis. Using longer-acting factor IX (FIX) products — known as extended half-life (EHL) products, or EHL-FIX — safely reduced factor use and helped children…