Hemophilia A: Symptoms, causes, and treatment
Hemophilia A is a rare genetic disorder that affects the blood’s ability to clot properly. It is the most common form of hemophilia, responsible for 80% of all cases.
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FDA awards support Sernova’s work into Cell Pouch for hemophilia A
The U.S. Food and Drug Administration (FDA) has given orphan drug and rare pediatric disease designations to Sernova’s experimental and cell-based hemophilia A treatment program using the Cell Pouch System, the company’s novel medical device. Orphan drug status is awarded to therapies aiming to treat…
Why my husband with hemophilia can be hard on himself
My husband, Jared, is a diligent worker and constant high achiever. An honor student in school, he has since excelled in various fields. From running a business to trying his hand at voice acting and cooking, he’s a jack of all trades in the most complete form of the…
A reminder about preparing my son with hemophilia for life on his own
Raising two sons with a bleeding disorder has given me hundreds of stories. Many of them lead to happiness and gratitude. Others are filled with pain and suffering. They are all a part of me in a way I never imagined they would be. The nice thing about having so…
Obizur (susoctocog alfa) for hemophilia
Last updated Nov. 21, 2023, by Margarida Maia, PhD ✅ Fact-checked by Joana Carvalho, PhD What is Obizur for hemophilia? Obizur (susoctocog alfa) is a recombinant, or man-made, antihemophilic factor therapy approved for the on-demand treatment of bleeding episodes in adults with acquired…
My husband’s hemophilia helped him sense his life purpose early
One ordinary evening, while a dear cousin and I relaxed in my living room, we delved into a profound conversation about purpose. We pondered why some people who struggle with mental health would cling to altruistic pursuits despite financial challenges they may have, especially since those challenges could create more…
Rethinking the classification of hemophilia to reflect its complexity
In the realm of hemophilia, I believe the current classification system oversimplifies a far more intricate reality. Severe, moderate, and mild hemophilia are classifications based on the amount of clotting factor present in a person’s blood. Hemophilia is a genetic disorder that impairs the blood’s ability…
Gene therapy for hemophilia A reduces bleeding in clinical trial
GS1191, a gene therapy in the pipeline of Gritgen Therapeutics, increased factor VIII (FVIII) activity in the blood of people with hemophilia AÂ taking part in a small clinical trial in China, resulting in fewer bleeding episodes. The fully enrolled investigator-initiated trial (ChiCTR2300073179) is testing the safety and…
Recalling a road trip’s moment of joy, despite living with hemophilia
Some years back, my two sons packed their suitcases and Caeleb, the youngest, said, “All right, it’s time to go on a Daddy-and-son madcap adventure.” My wife had a speaking engagement out of town, which meant the MacDonald boys were going to set out on their own, together on the…
Embracing the ‘both/and’ of hemophilia in the season of thanks
I do love Thanksgiving season. Families gather, food is shared, and quality time is priceless. But not everyone enjoys the holidays. In them, we’re encouraged to live a life filled with thanks, a life of thanksliving. Ugh. Yes, it’s a nice thought, but sometimes it’s enough to distract…