Hemophilia is a genetic disorder that prevents blood clotting. Most common in men, there are two main types of hemophilia: hemophilia A and B. Below is a curated list of recommended reads for family members, friends and carers of patients with hemophilia, with help from Good Reads and Alibris.
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Hemophilia is a genetic disorder that impairs blood clotting and is most common in men, with two main types: A and B. Hemophilia A, the most common form, is caused by a mutation on the X chromosome affecting factor VIII production. While there's no cure, treatments and physical activities like swimming can help manage the condition. Women with abnormal bleeding should be assessed for hemophilia, especially with a family history.
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The World Federation of Hemophilia states that any person, male or female, with factor levels below 40 percent has hemophilia. However, conventional medical wisdom has not caught up. Women who have abnormal bleeding should be assessed for hemophilia, particularly when they have a family history. Yet too…
For many years, those who suffered from hemophilia were told to not take part in any kind of physical exercise. It was only in the last 40 years or so that doctors started encouraging patients to choose a physical activity that’s both safe and enjoyable for each individual. Play safe…
Hemophilia A is a rare genetic disorder that affects the blood’s ability to clot properly. It is the most common form of hemophilia, responsible for 80% of all cases.
Hemophilia can affect many aspects of life, including sexual health. If you have hemophilia, sexual activity is generally safe as long as certain precautions are taken.
Recently, I had the pleasure of speaking with Dr. Carol Kasper, a highly regarded hematologist who has dedicated her life’s work — over 40 years of research and patient care — to individuals with hemophilia. Although Kasper retired three years ago, she continues to…
I’ve been dating for nearly 40 years, and consider myself somewhat of an expert. Valentine’s Day feels like the perfect opportunity to impart my experience and wisdom. One thing is certain: Dating with hemophilia and von Willebrand disease is like a box of chocolates — you never know…
In the U.S., hemophilia A is estimated to affect one in every 5,000 male births, hemophilia B one in 25,000 male births, and hemophilia C one in every 100,000 people (males and females). Hemophilia A is thus four times more common than hemophilia B, and about 10 times more common than…
Hemophilia is a rare disorder in which a person’s blood is not able to clot properly, resulting in unusually easy and prolonged bleeding.