The National Institutes of Health (NIH) is supporting a university’s research into the risk factors and underlying mechanisms involved in the development of neutralizing antibodies, or inhibitors, against replacement therapies in people with hemophilia A. The $6.6 million, three-year grant from the NIH’s National Heart, Lung, and Blood Institute…

Hemophilia is a lifelong condition, both for my husband, Jared, and me. He’s had hemophilia B since he was born, and until a cure is found, it’s here to stay. While I don’t have hemophilia, we both must live with it. I imagine hemophilia to be like a…

The U.S. Food and Drug Administration (FDA) has cleared the biotechnology company TeraImmune to launch a Phase 1/2a clinical trial testing TI-168, its regulatory T-cell therapy designed to eliminate inhibitors in people with hemophilia A. The upcoming trial is expected to enroll up to 18 people with congenital (genetic)…

Greetings! I’m writing from Orlando, Florida, my temporary oasis from the wrath of Hurricane Ian. Last week, my mom and I evacuated to this inland city from Punta Gorda, on the coast in the southwest part of the state. Staying was not an option as my mom is oxygen-dependent…

COVID-19 vaccines, because they work to stimulate the immune system, may be an emerging cause of autoimmune conditions like acquired hemophilia A, according to a case report. “This report aims to highlight the risk of … [acquired hemophilia A] following an immune stimulus, thus improving our knowledge regarding possible…

Parenthood has transformed my husband, Jared, and me in many ways. We’ve had to be responsible for a lot of things. We must look after our daughter, Cittie, as well as our home, our health, and our relationships with each other and other people. When I was younger, I used…

Well, hello, Ian. Please go away. As I write this, the track of Hurricane Ian has shifted south from Tampa, Florida, and toward my home in Punta Gorda. Not my first time at this rodeo. In 2004, Hurricane Charley, which was Category 4, devastated my hometown. But this…

A significant proportion of bleeds in people with hemophilia A are left untreated, according to an analysis of data from an observational study. Because only treated bleeds are typically reported in clinical trials, these findings suggested the full disease burden is not adequately captured in many studies. As such,…

This morning I walked with my youngest son, Caeleb, into his school. He depended on a walker to help relieve the pain he felt in his right ankle and knee. The ravages of multiple internal bleeding episodes have left my son with tremendous pain. His ability to walk…

I thought the worst days were behind me in helping my youngest son navigate his bleeding disorder. Caeleb is 16 years old and a junior in high school. During his younger years, an inhibitor wreaked havoc on my son, causing extreme complications and joint bleeds that took an…