3 Tips for Coping With a Hemophilia Diagnosis


Discovering your child has hemophilia can be devastating. While you will certainly need to make some lifestyle changes moving forward, with the correct treatment and preventative measures, there’s no reason why your child can’t live a happy and healthy life.

To help you come to terms with life with hemophilia and feel more in control, the Hemophilia Federation of America offers the following advice:

MORE: 13 tips for managing your child’s hemophilia

Find a hematologist
A hematologist is an expert in treating blood disorders, including hemophilia. A list of hemophilia treatment centers in the U.S. can be found here.

Educate yourself
Learn all you can about hemophilia and how to manage the disease. Use trusted Internet sources that are up to date with all the relevant information and research about the disease including symptoms to watch out for, how to detect bleeds, and what to do when bleeds occur. The more you know about hemophilia, the more prepared you’ll be to take a proactive role in the treatment of your child’s condition.

Seek support
There are many online resources for patients and families where you can share information with others going through the same thing. Support groups offer both practical and emotional support and can be particularly useful in the first few months as you are navigating your way around the disease.

MORE: Understanding the basics of hemophilia

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

One comment

  1. fake mail says:

    I take pleasure in in direction of generate imaginative aspects these kinds of as poetry
    and small studies, yet I wear’t realize what I would be capable
    in the direction of do with the innovative creating level.
    . . Other than an creator or poet, what can I do with a innovative producing amount?.

Leave a Comment

Your email address will not be published. Required fields are marked *