Hemophilia Federation of America Gathering Memorabilia to Mark 25 Years of Service

Hemophilia Federation of America Gathering Memorabilia to Mark 25 Years of Service

The Hemophilia Federation of America (HFA) is seeking a variety of historical artifacts and records to add to its archival project in honor of its upcoming 25th year of helping the bleeding disorders community.

The nonprofit is collecting vintage medical equipment, supplies, rally posters, newsletters, documents, personal journals, diaries, and photographs depicting the reality of life with a bleeding condition or other memorabilia reflecting HFA’s story of endurance and resilience. These items will be displayed at its 2019 symposium in San Diego.

HFA started the historical project “Honoring Our Past, Building Our Future” five years ago to mark the organization’s 20th anniversary, and highlight the milestones and triumphs, as well as the difficulties, of the bleeding disorder community over the years.

In 2019, in its 25th year, the organization intends to add on to its historical collection to continue to preserve a comprehensive record of the community’s history.

Anyone with historical items is welcome to contribute to this display, and can email [email protected] with a photo or description of what they would like to add. A committee will review all submissions and work with contributors to collect and return materials.

Every year, HFA holds a symposium, a community-centered educational event for members of the bleeding disorders community to share information, learn about new advancements, and build a network of support. Next year’s event will be held April 4-6 in San Diego, where the organization will display its collection in an updated history exhibit.

Established in 1994, HFA pursues a better quality of life for all people with bleeding disorders by advocating for safe, affordable, and obtainable therapies and health coverage.

To achieve this, the organization speaks regularly before the Food and Drug Administration, Centers for Disease Control and Prevention, and other key agencies. HFA also represents the bleeding disorders community on Capitol Hill in Washington, D.C., where it is based.

In addition, HFA often organizes a wide range of adult outreach initiatives, as well as broad-based support for families living with hemophilia, Von Willebrand disease, and other bleeding disorders.

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