What do people with hemophilia actually need?
When someone we love is diagnosed with a chronic illness, our instincts often compel us to search for solutions: stricter…
Articles by Allyx Formalejo
How to support a loved one with chronic illness
Living with someone who has a chronic illness has taught me much about perspective — both my own and that…
Embracing the holiday hustle and bustle in our own way
While the holiday season brings excitement, it also creates unique challenges for families like ours who are managing chronic conditions.
Understanding the nuances of hemophilia bleeding
After a decade of living alongside my husband, Jared, and his severe hemophilia B, I’ve learned that not all…
For my husband, it’s harder living with epilepsy than hemophilia
When people hear about epilepsy, they often picture sudden, dramatic falls, frantic efforts to keep the person safe, and…
The benefits of pride and dignity, for people with disabilities in particular
I’ve lately come to realize that pride and dignity are core values in my life, profoundly influencing my sense of…
How hemophilia influenced my husband’s need for validation
Living with hemophilia involves more than managing physical symptoms. It comes with mental and emotional challenges, too. My husband,…
What we’ve learned about obesity, fat-shaming, and hemophilia
Fat-shaming is a widespread issue that can also affect people with hemophilia, especially young children. At its core, fat-shaming…
What does a minor cut do to someone with hemophilia?
One of the most pervasive and amusing misconceptions about hemophilia is that a person with the condition could bleed…
Rejection is a risk worth taking, even in the context of hemophilia
Ever since turning 30, I’ve been on a fast track toward self-improvement, determined to get the most out of life.