When my husband, Jared, was younger, he was “the sick child.” With severe hemophilia B and a seizure disorder,…
Articles by Allyx Formalejo
My husband, Jared, lives with severe hemophilia B and a seizure disorder. Despite these challenges, he’s active in ways…
At age 28, I received a diagnosis that changed the way I saw myself. Learning that I had attention-deficit/hyperactivity disorder…
When someone we love is diagnosed with a chronic illness, our instincts often compel us to search for solutions: stricter…
Living with someone who has a chronic illness has taught me much about perspective — both my own and that…
While the holiday season brings excitement, it also creates unique challenges for families like ours who are managing chronic conditions.
After a decade of living alongside my husband, Jared, and his severe hemophilia B, I’ve learned that not all…
When people hear about epilepsy, they often picture sudden, dramatic falls, frantic efforts to keep the person safe, and…
I’ve lately come to realize that pride and dignity are core values in my life, profoundly influencing my sense of…
Living with hemophilia involves more than managing physical symptoms. It comes with mental and emotional challenges, too. My husband,…