Should you bring hemophilia medication to the hospital?
For those of us living with bleeding disorders, a critical question often looms large: In the event of an…
Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. She has deep roots in the bleeding disorder community, having been diagnosed with hemophilia B and Von Willebrand’s disease in 1975 at the age of 10. A proud graduate of the University of Wisconsin–Madison with a BA in marketing and journalism, Jennifer also completed MIT’s prestigious Birthing of Giants Fellowship Program. Originally from Brookfield, Wisconsin, she now lives in sunny Punta Gorda, Florida. Jennifer is the founder of GirlsBleedToo.com, a platform dedicated to raising awareness about bleeding disorders in women and girls. Through her writing, she hopes to educate, advocate, and amplify the voices of those—especially women—living with these often-overlooked conditions.
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For those of us living with bleeding disorders, a critical question often looms large: In the event of an…
My primary care provider recently retired and was replaced by a doctor new to my area. As I prepared for…
What do all the people with bleeding disorders I’ve interviewed for this column have in common? Each of them…
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I met Jennifer Hastie last year at the Hemophilia Federation of America’s Mild Matters Summit in Tulsa, Oklahoma. Along…
Priscilla Oren, a member of the hemophilia community, recently shared her family’s history with me. Her son was a…
I spent part of a day this week trapped in my condo’s elevator. Since Hurricane Ian hit my town…
Feet and ankle problems are common for people with bleeding disorders, including hemophilia B and von Willebrand disease.
The past two weeks have been a whirlwind of activity for me, highlighted by two significant events. First, I attended…
Saying no has always been a challenge for me. I tend to overcommit, take on too many tasks, and then…
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