Our hemophilia community has been here before. A novel virus — previously, it was HIV — hit the…
Articles by G Shellye Horowitz
In the past month, it has been hard for me to focus on hemophilia advocacy efforts, which normally…
COVID-19 has upended our lives. It is hard. As an individual with a chronic condition, I find myself…
Over the past few years, I have learned that bleeding disorders are complex, particularly for women. Hemophilia is…
Accessing quality healthcare can be a struggle. Women with hemophilia have added challenges that range from not understanding their own…
This week is National Eating Disorders Awareness Week. Eating disorders are tough to address, yet critical, as…
I attended my first women-only hemophilia retreat in the fall of 2016. To say the weekend was an…
Carrier moms — those whose sons or daughters have hemophilia — inspire me. I see you struggle, sometimes…
Inheritance patterns in hemophilia are a common discussion topic for many reasons. Among the reasons that people seek information about…
Editor’s note: Please be advised that the topic of suicide is addressed in this column. Resources for help are listed…