Counting the Missing Women with Hemophilia
The World Federation of Hemophilia states that any person, male or female, with factor levels below 40…
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
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The World Federation of Hemophilia states that any person, male or female, with factor levels below 40…
Since hemophilia was discovered, it has been accepted as a male disease. No one questions that a man…
Living with hemophilia is challenging for anyone. It can be even more difficult for women who struggle to…
I am a woman with mild hemophilia. I was angry when I realized that I had gone years without…
I recently attended a national conference for women with hemophilia. Common themes emerged as I listened to women’s…
You’ve been talking to prospective Mr. Wonderful for a few weeks now. You have a lot in common,…
I am writing to you on behalf of all the women with a hemophilia mutation. My blood sisters have varying…
Getting diagnosed with hemophilia is a whirlwind. It doesn’t matter if someone is diagnosed at birth or in…
I grew up believing that it was impossible for a hemophilia carrier who was also a woman to…
Four years ago, I relocated to a rural community. My hemophilia treatment center (HTC) was six hours away,…
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