Grieving My Father’s Absence in My Hemophilia Journey
A conversation Last night I dreamed that I spoke with my father. I asked him how he knew…
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
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A conversation Last night I dreamed that I spoke with my father. I asked him how he knew…
I am not merely a carrier of hemophilia. I am certainly…
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I have a confession: I hate to self-infuse. I am really bad at it. Well, at least…
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Inspired to sponsor a national conference for women with hemophilia types A and B, The Hemophilia Foundation…
I am a patient. I am an expert on my own health experiences. I am an educator. I…
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