Even amid medical challenges, I find reasons to be thankful
I can already tell this journey will be long, and that sucks. I remind myself to breathe. Inhale for a…
Articles by G Shellye Horowitz
Could my chronic GI problems lead to a new diagnosis?
Doubled over in pain, I can barely walk, and just breathing hurts. A tight, squeezing sensation like a vice grip…
Why equal representation matters in the bleeding disorders space
I walked into the bleeding disorders conference filled with anticipation. After living abroad for over a decade, I had returned…
Emergency needs become a wake-up call for this rural patient
Well, it was bound to happen sometime. My first ambulance ride. I was awakened suddenly from a deep sleep at…
A ham radio license makes me feel safer as someone with hemophilia
“Whiskey-Bravo-six-Zulu-Yankee-Yankee looking for a radio check,” my dad called out into his faithful Kenwood handheld 2-meter radio. “W-B-6-Zed-Y-Y, I hear…
Correcting misinformation about women and X-linked disorders
Rare Rewritten, a new campaign by the nonprofit group Remember the Girls, seeks to persuade prominent medical organizations to update…
Finding life’s miracles despite living with hemophilia A
“There are only two ways to live your life. One is as though nothing is a miracle. The other is…
How a new doctor made me feel safe as a woman with hemophilia
Forty-six. That’s how old I was when I finally accessed the hemophilia care that I’d needed my entire life.
What I’ve learned about obesity, joint pain, and hemophilia bleeds
It’s never easy to talk about weight. Like many people, my weight has wildly fluctuated throughout my adult life, sometimes…
Whoops, I forgot I’m living with hemophilia!
Sometimes I forget I have hemophilia. I know that sounds silly, particularly after years of struggle to obtain a…