I love margherita pizza. Fresh tomato, mozzarella, and basil on a thin, crispy crust, especially when it’s made with cauliflower, taste amazing. My favorite restaurant adds banana peppers, which make it even better. Last Friday, I suggested pizza for dinner, and the hardest part was deciding whether my…
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Editor’s note: This story includes discussion of sexual abuse. If you or someone you know needs help, the RAINN national sexual assault hotline in the U.S. is available 24/7 by calling 1-800-656-4673 or texting HOPE to 64673. There is also an online chat at rainn.org/help-and-healing/hotline. Internationally, the University of…
Lately, I’ve been noticing something about the way money affects my mental state. When our family budget starts running low, I feel it almost immediately. Not just as stress, but as a kind of heaviness that settles over everything. My motivation drops. I move slower. Sometimes, I even find…
For much of my life in the bleeding disorders community, I’ve seen remarkable innovation happen around me. Hemophilia treatment has changed dramatically. Products have become longer acting. Prophylaxis has become more common. Gene therapy entered the conversation. Nonfactor therapies opened doors many people never imagined existed. The…
In observance of Mother’s Day, I can’t help but think about three amazing women who have proven their strength and dedication to my sons, Julian and Caeleb, who both live with hemophilia A. All three of them approached hemophilia in very different ways when they were confronted…
Certain moments stay with me forever. I remember walking down the church aisle with my dad toward my future spouse, the scent of my babies when I first held them, and the bishop’s hands on my head as I knelt among my fellow clergy during my ordination as a…
Editor’s note: This story includes discussion of sexual abuse. If you or someone you know needs help, the RAINN national sexual assault hotline in the U.S. is available 24/7 by calling 1-800-656-4673 or texting HOPE to 64673. There is also an online chat at rainn.org/help-and-healing/hotline. Internationally, the University of…
My husband, Jared, first set foot in a gym just months into our relationship. It wasn’t some grand fitness decision — just curiosity. What would it feel like to work out? That question led us to a small, hole-in-the-wall bakal gym near his university — a Filipino term…
I recently wrote a paper that compared how different religious traditions address bleeding disorders, starting with where they are mentioned in sacred texts. The study of theology is one of my many interests. As someone who identifies as a polysectarian (I’m connected to two religions, both of which often demand…
“I don’t see blood, so you must not be bleeding.” For people with bleeding disorders, that kind of thinking isn’t just frustrating; it can be dangerous. Bleeding isn’t always visible or dramatic. It doesn’t always look like blood pouring from a wound or a bruise that appears immediately. For…
