Columns

September 5, 2019September 3, 2019

Hope in the Toughest of Circumstances

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Yesterday, I went through the pictures on my iPhone. I started with the most recent, moving backward, my heart beating faster with each swipe. By the time I had ... Read more

September 4, 2019August 30, 2019

My Message to Teachers: When in Doubt, Call Me

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The start of a new school year is one of my favorite times. It smells of new pencils and crayons, lunchboxes, and my favorite, spiral notebooks. It’s a season ... Read more

September 3, 2019August 29, 2019

Factor Replacement Trials Must Include Women

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Dear pharmaceutical companies, I am speaking to every one of you who makes a factor replacement product for hemophilia. Thank you for developing more options and safer products for ... Read more

August 29, 2019August 27, 2019

Changes in Treatment Options Result in Redefining Boundaries

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

There is no doubt that the new medicine Hemlibra (emicizumab) is a game changer in the treatment of hemophilia. Instead of multiple infusions daily, one injection could last two ... Read more

August 28, 2019August 23, 2019

The Value of a Gym Membership for Someone with Chronic Illness

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

After over a year without a gym membership, my wife, Cza, and I are back in our lifting den. We do it for fun and, of course, fitness. I’ve ... Read more

August 28, 2019August 23, 2019

Practicing Self-care Is Key to Caregiver Health

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Caregiving is hard work. When your child is chronically ill, caregiving goes beyond the expected parental duties. You have overwhelming responsibilities. There are doctor’s appointments, infusions, and treatments at ... Read more

August 27, 2019August 27, 2019

Advocating for Women with Hemophilia Through National Conferences

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Patrice Thomas has utilized her skills as a women’s healthcare advocate to learn about marginalized communities and support structural change. Through her current position at the Hemophilia Foundation of ... Read more

August 22, 2019August 20, 2019

A Leap of Faith and an Allergy Treatment Changed My Son’s Life

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

For many years we tried to overcome my younger son’s reaction to factor VIII. No matter which medical product we tried, we ended up with the same results. He ... Read more

August 21, 2019August 19, 2019

Receiving News That’s Hard to Hear

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Over the past few months, my son Caeleb has complained of knee pain. “It’s not buzzy or achy, Mom,” he would say. “It just really hurts.” After his annual ... Read more

August 20, 2019August 15, 2019

My Father’s Legacy and Prophylactic Treatment

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I will never forget the evening in the mid-80s when my parents sat my brother, my sister, and me down for a critical conversation. They told us that my ... Read more

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