Columns

February 27, 2019February 26, 2019

I Have a New Perspective, but I Still Remember the Past

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

In my home these days, hemophilia is like a family member who stops by for a fleeting visit — just long enough to say hello and give a quick ... Read more

February 21, 2019February 20, 2019

Removing Port Number 7

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

This week, we will consult with the surgeon who will have placed and removed six of my son’s seven port-a-caths. There will not be an eighth foreign object in “MacDonald ... Read more

February 20, 2019February 18, 2019

Self-care Isn’t Selfish

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you become a parent, your world instantly changes. Your life focus becomes the child that you have brought into the world. When your child has a chronic condition, ... Read more

February 18, 2019February 15, 2019

At Times, Letting Go of Perfection Is the Perfect Decision

Columns, HemoWife - a Column by Alliah Czarielle

All of the items I own are covered with breast milk; it’s on my clothes, bedsheets, even my phone. Its subtle sweetness occasionally attracts ants in the same way ... Read more

February 14, 2019February 13, 2019

We Will Continue to Rebuild Our Lives

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

February 2014 proved to host the last bleed “MacDonald the Younger” faced thus far. The treatment plan created by our Hemophilia Treatment Center worked like a charm, and in ... Read more

February 13, 2019February 12, 2019

My First Steps into Parenthood

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

As I write this, I’m bedridden from a bleed in my right hip. I’m learning what it means to have both hemophilia and a baby girl. Although I could ... Read more

February 13, 2019February 12, 2019

What Are the Things That Most Defines Us?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The following is a group activity I like to do in some of the workshops and presentations that I give. Each person has 16 slips of paper and I ... Read more

February 11, 2019February 8, 2019

To My Husband, the Father of My Daughter

Columns, HemoWife - a Column by Alliah Czarielle

To the father of my daughter, Thank you for being present from the very beginning of my pregnancy — when those two lines first appeared, and you told me ... Read more

February 7, 2019February 5, 2019

This Is Way Beyond My Understanding

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

My youngest son, wife, and I just returned from an appointment with our hematologist concerning plans for treatment. In the twinkling of an eye, our worlds changed. We will ... Read more

February 6, 2019February 4, 2019

My Son Progressed from Severe Hemophilia to Mild, and I’ll Take It

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior Caeleb is about to start a new chapter in his life with hemophilia; it’s one I never imagined I’d see. About nine months ago, Caeleb began ... Read more