Columns

June 22, 2020June 18, 2020

Embracing an Imperfect Life with ‘Amor Fati’

Columns, HemoWife - a Column by Alliah Czarielle

Life is awful from time to time. As someone with mental illness who is married to a person with hemophilia and epilepsy, I am no stranger to that thought. ... Read more

June 18, 2020June 16, 2020

Answering the Tough Questions

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

As caregivers of loved ones managing chronic illness, we face questions that, when first heard, knock us to our knees. For my family, it was not so much a ... Read more

June 17, 2020June 15, 2020

Learning Lessons from Being Bullied Over Mobility Aids

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Sometimes being different is a good thing. You display your unique characteristics and qualities to the world through your clothing, hair, and makeup. Your actions reveal your views on ... Read more

June 15, 2020June 11, 2020

Disability, Codependency, and Narcissistic Relationships

Columns, HemoWife - a Column by Alliah Czarielle

My husband, Jared, and I both share an interest in psychology and human relationships. We often bond over discussions about mental health and the way human beings interact. As ... Read more

June 11, 2020June 10, 2020

Advocating Out of the Shadows and Into the Light

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

It’s essential that we inform the world about struggles in the bleeding disorders community by showing them how to be advocates. We must teach our loved ones how to ... Read more

June 10, 2020June 8, 2020

Letting Go and Moving Forward

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My family is preparing to move back to New Mexico. My husband’s job as a United Methodist pastor calls us to move often, so we have the moving process ... Read more

June 9, 2020June 5, 2020

Women Must Keep Pushing for Hemophilia Diagnoses

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Today my hematologist complimented me. She told me that, had I not persevered, I may have only been labeled a “carrier” and my bleeding disorder may not have been ... Read more

June 8, 2020June 4, 2020

My Daughter Has a Life of Her Own

Columns, HemoWife - a Column by Alliah Czarielle

My toddler, Cittie, recently got a new tricycle. She took to it instantly, although she couldn’t reach the pedals yet. The trike has a long attachment that allows us ... Read more

June 5, 2020June 3, 2020

Finding the Familiar on an Old Stretch of Highway

Columns, Stories from the Road - a Column by Ann Kendall

On a recent Sunday afternoon, cabin fever got the best of my family and we headed out to see where the road would take us. Our parameters were straightforward: ... Read more

June 4, 2020June 2, 2020

Keeping Museum Fridays Alive

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

During the summer, my sons and I usually choose a museum to visit on Fridays. It started with “MacDonald the Older” and continues with “MacDonald the Younger.” I look ... Read more