Columns

June 26, 2019June 24, 2019

Lessons I Learned from My Son’s Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Twenty-three years ago, my life changed dramatically. I became a mom. My firstborn, Julian, entered the world screaming at the top of his lungs with a head full of ... Read more

June 25, 2019June 20, 2019

Correcting the Lag in Hemophilia Treatment for Women

Columns, The Forgotten Factor - a Column by Shellye Horowitz

In the past, no one believed women could have hemophilia. The medical community assumed that one X chromosome would compensate for the other. Doctors now know about the process ... Read more

June 21, 2019June 19, 2019

Teens Using the Gift of Gab for Action

Columns, Stories from the Road - a Column by Ann Kendall

I recently had the opportunity to spend the afternoon with a group of teens from our local bleeding disorders organization, HACA, which stands for Hemophilia Association of the Capital ... Read more

June 20, 2019June 18, 2019

The Demands of a Job vs. the Need for Healthcare

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I work as a pastor in the United Methodist Church. One of the many challenges of participating in a denomination that calls ministers to move quite frequently in an ... Read more

June 19, 2019June 17, 2019

Children Are Different, and So Are Their Experiences with Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Most people will tell you that their children are opposites. One is outgoing, the other would rather be left alone. One will talk until your head hurts, the other ... Read more

June 18, 2019June 19, 2019

Support Changes Everything

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Hemophilia takes a toll not just on the life of the individual who struggles with the disease, but also on the family unit. It is not easy to have ... Read more

June 17, 2019June 13, 2019

Practicing Self-care as a Mom and a Spouse to a Person with Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle

It’s been nearly five months since I became a mom to baby Cittie. In those months, my life has been transformed into something completely different. My social media feed, ... Read more

June 13, 2019June 11, 2019

The World Is Changing for Hemophilia Care

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

The other day, I picked up “MacDonald the Younger” from hemophilia camp. I enjoyed the trip through the mountains. The air felt fresh as I grew anxious to see ... Read more

June 12, 2019June 10, 2019

Summer Camp Success: Time with Fellow Warriors Fosters Independence

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am a believer in the benefits of summer camp — hemophilia camp to be specific. Children with bleeding disorders across the U.S. have the opportunity to spend time ... Read more

June 11, 2019June 11, 2019

Struggling with Self-infusion

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I have a confession: I hate to self-infuse. I am really bad at it. Well, at least most of the time I am. The multitude of blown and missed ... Read more