Columns

August 27, 2018August 23, 2018

Why Can’t a Person with Hemophilia Be Considered ‘Healthy?’

Columns, HemoGirlfriend - a Column by Alliah Czarielle

I’m looking at you, insurance companies and banks who won’t approve people who have a history of chronic illness or who were born with one — such as my ... Read more

August 23, 2018August 28, 2018

Helpless, but Not Hopeless

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

Part one in a series.  I stood over my son’s hospital bed, waiting for the morphine to kick in and give him some relief. “MacDonald the Younger” continued to ... Read more

August 22, 2018August 20, 2018

I Graduated from College and I Have Hemophilia, so What Now?

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

I’ve always had a hard time coping with the fact that it’s quite difficult for me to find a decent source of income due to hemophilia and epilepsy. Although ... Read more

August 22, 2018August 20, 2018

Basketball Hopes for My Son with Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Caeleb is super excited about starting the seventh grade this week. He loves the new town we are living in and is hopeful for the school year. He wants ... Read more

August 20, 2018August 17, 2018

A Carer’s Experience of ‘Invisible Disability’ Discrimination

Columns, HemoGirlfriend - a Column by Alliah Czarielle

It’s almost 11 in the morning. My husband Jared and I are lined up at the mall-based satellite branch of our national health insurance system. By now, the mall ... Read more

August 16, 2018August 17, 2018

The Dreaded ‘Beginning of School’ Question

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

“MacDonald the Younger” is entering the seventh grade this year. His health is terrific, and for the first time in his life, there is very little fear about participating ... Read more

August 15, 2018August 14, 2018

I Will Not Be Quick to Blame My Child’s School

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Having a bleeding disorder can be frightening. In the beginning, it is normal to think about the what-ifs when you’re unsure of what to expect. “What if I don’t ... Read more

August 13, 2018August 10, 2018

Help Me Help You: A Carer’s Perspective

Columns, HemoGirlfriend - a Column by Alliah Czarielle

Last week, just after our wedding, Jared got a shoulder bleed. Jared has severe hemophilia B, but he does not get bleeds often. When he does, it’s almost like ... Read more

August 9, 2018August 9, 2018

Our Family’s Second Hemophilia Diagnosis Was Harder than the First

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

  My eldest son was about to celebrate his ninth birthday. He had attended a fantastic performing arts camp. My wife and I bought Happy Meals for the entire ... Read more

August 8, 2018August 6, 2018

Thinking About Finances and Fatherhood

Columns, The 'I' in Hemophilia - a Column by Jared Formalejo

The topic of fatherhood is often an awkward one to talk about with other men. To an extent, I have that same sort of apprehension as I always find ... Read more