Columns

May 16, 2018May 15, 2018

Despite Hemophilia Joint Damage, New Treatment Opens Up Possibilities

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior Caeleb came home from school last week with a question. “Mom,” he asked, “my knee is really messed up, isn’t it?” I couldn’t see an injury, and so I ... Read more

May 9, 2018May 9, 2018

New Hemophilia Therapy Could Be a Game Changer

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

With my oldest son, who is now 21, I never worried about limitations. He played soccer for a season, and that was the extent of his athletic pursuits. He ... Read more

May 2, 2018April 30, 2018

Why Do We Walk? Because We Can!

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I recently spoke to members of the Sangre de Oro Chapter of the National Hemophilia Foundation, based in Albuquerque, New Mexico. They are my family. We gathered to “kick ... Read more

April 19, 2018April 18, 2018

Finding Our Way, with Community

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

I held my son, my firstborn, in my arms. From outward appearances, no one could guess that he had a bleeding disorder. Some moments, I forgot about his diagnosis. ... Read more

April 18, 2018April 17, 2018

A Month’s Supply and Feeling Lost

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I couldn’t believe Caeleb was about to get his first dose of Hemlibra (emicizumab-kxwh). I have been following several people whose children participated in the Hemlibra study (NCT02622321) before ... Read more

April 11, 2018April 10, 2018

Moving Is Complicated: Here Are a Few Tips to Help You Plan

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When my sons were born and diagnosed with hemophilia, we lived in Houston and had access to the Gulf States Hemophilia and Thrombophilia Center. I had access to treatment and ... Read more

April 5, 2018April 4, 2018

My First Moments

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

There are moments that forever alter lives. Sometimes we celebrate educational goals, while others encounter the excitement of new love. Other times leave us breathless as we attempt to ... Read more

April 4, 2018April 4, 2018

The Last Bucket

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I have a few rituals on Sunday evenings. I check to make sure clothes are washed and ready for the week, I set the menu so that we ... Read more

March 28, 2018March 29, 2018

The Love of a Mama Bear: Never Forgetting the Diagnosis

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I had the amazing privilege of speaking to the women of the Gateway and Midwest hemophilia associations at their annual retreat for women with bleeding disorders. There is ... Read more

March 21, 2018March 29, 2018

Fear in the Face of a New Treatment

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

I am still waiting to hear from our hemophilia treatment center about whether our insurance will cover Hemlibra (emicizumab-kxwh) for Caeleb. Honestly, I’ve put it out of my mind for a ... Read more

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