Columns

The Challenges of Dating as a Woman With Hemophilia

I’ve been dating for nearly 40 years, and consider myself somewhat of an expert. Valentine’s Day feels like the perfect opportunity to impart my experience and wisdom. One thing is certain: Dating with hemophilia and von Willebrand disease is like a box of chocolates — you never know…

Celebrating My Boys While Never Forgetting Hemophilia

Last Sunday, my oldest son came to town for a photoshoot. He hopes to build a strong website presence so that directors and casting agents consider him for future projects in musical theater. We made plans to eat lunch before meeting with the photographer. My youngest son joined me, and…

Teachable Moments May Change Perspectives

I went to college to become a teacher. Actually, to become a middle school band director. Four years of college were great, but student teaching was how I learned to teach. Two excellent supervisory teachers helped me find my way, answered questions, and taught me useful lessons by their example.

Reflections on Pain After an Odd Jaw Bleed

It happened after a month of celebrations. First, it was Christmas and New Year’s. Then, it was my husband Jared’s birthday. Five days later, our daughter, Cittie, turned 3. Plus, we had just moved to a new home next to some uncles who kept inviting us to relatives’ birthdays…

A Glimmer of Hope Propels Me Through the Darkness

The Sacramento Christian Camp and Conference Center lies in New Mexico’s Sacramento Mountains at an elevation of 9,500 feet. It offers fresh air and magnificent views of the surrounding mountains and valleys. I’ve been visiting the camp for over 15 years and still get caught up in the extraordinary…

My Husband Is Strong Because of Hemophilia

A sealed jar that no one can open. A faucet attachment that’s been screwed on too tightly. A piece of furniture that needs to be moved. These are just some of the problems we encounter at our home on a regular basis. And the one person who can solve them?…

Returning to a Plant-based Diet This ‘Veganuary’

The U.K. charity Veganuary challenges people to eat only vegan foods in the month of January as part of an effort to promote health, protect the environment, and end animal farming. People choose to follow a vegan diet, which excludes all animal products such as eggs, dairy, and meat,…

Advocacy Needs to Continue, Even During Easy Times

We find ourselves in a delightful spot regarding hemophilia. My youngest boy’s last internal bleeding episode occurred nearly eight years ago. Using prophylactic treatment, we’re managing his bleeding disorder well. My older son, who struggled with breakthrough bleeding episodes despite using a recombinant factor VIII product, now finds…