My son Caeleb participated in a marching band competition this past Saturday. He plays the keyboard in the pit so that he doesn’t have to move around on the field, which would cause intense pain. Many years of internal bleeding left no cartilage in my son’s damaged right…
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I like to watch jugglers. From balls and plates, to bowling pins and swords, performers toss items into the air one after another, never letting them hit the floor. Their hand-eye coordination is tremendous, as well as their ability to move, twirl, and even ride a unicycle while keeping the…
Parenthood has transformed my husband, Jared, and me in many ways. We’ve had to be responsible for a lot of things. We must look after our daughter, Cittie, as well as our home, our health, and our relationships with each other and other people. When I was younger, I used…
Well, hello, Ian. Please go away. As I write this, the track of Hurricane Ian has shifted south from Tampa, Florida, and toward my home in Punta Gorda. Not my first time at this rodeo. In 2004, Hurricane Charley, which was Category 4, devastated my hometown. But this…
I discovered that I have a talent unlike any other. I’m a world champion at throwing pity parties. When times get tough and I feel lost, all I must do is put a cone-shaped hat on my head and recognize my misfortune. My glum permeates the air as I raise…
I have a version of Pandora’s box. Fortunately, the box doesn’t see the light of day. I keep it on the top shelf of my closet, hidden behind extra pillows that are stored away for months on end. The box contains years of pain, grief, sorrow, and buckets of tears.
My husband, Jared, and I are just starting to figure out family life. As novices to the world of parenting and homemaking, we’re navigating our child’s formative years and learning to maintain a household through trial and error. Living by ourselves has been an especially helpful experience. Choosing not…
The end of 2022 is rapidly approaching, and I’ve made nary a dent in my fitness and diet goals for this year. Oh, sure, I have a ton of excuses — like my foot that swells up when I walk more than a mile — but there really…
This morning I walked with my youngest son, Caeleb, into his school. He depended on a walker to help relieve the pain he felt in his right ankle and knee. The ravages of multiple internal bleeding episodes have left my son with tremendous pain. His ability to walk…
I thought the worst days were behind me in helping my youngest son navigate his bleeding disorder. Caeleb is 16 years old and a junior in high school. During his younger years, an inhibitor wreaked havoc on my son, causing extreme complications and joint bleeds that took an…
Recent Posts
- Maintaining an exercise regimen benefits my husband with hemophilia
- A quest to find references to bleeding disorders in sacred texts
- The importance of listening to those of us with bleeding disorders
- Many women with hemophilia-related mutations lack access to medical care
- How my sons define freedom as young men with hemophilia
