Columns

How to Be Prepared This Holiday Season

The holiday season is in full swing, and with fewer shopping days, it will be upon us more quickly than usual. While we are concerned with presents, shopping, parties, and entertaining, it is easy to forget about taking care of ourselves. We can put off our self-care easily by blaming…

Breaking into the Boys Club: Women with Hemophilia

Since hemophilia was discovered, it has been accepted as a male disease. No one questions that a man is struggling with hemophilia. A man with a bleeding disorder living in a developed country is rarely denied access to healthcare. When he receives a diagnosis, he is told that…

Gratitude on the Hemophilia Journey

Living with hemophilia is challenging for anyone. It can be even more difficult for women who struggle to obtain a diagnosis and treatment. Despite the struggles, I am thankful for many things. A missed diagnosis I am thankful that the hospital lab made an…

Dreams of a Better Future

My husband, Jared, and I are at a point in our lives where our careers have taken on greater significance. It seems like just yesterday when we were college students eager to graduate and experience life, curious about the mysteries that the future might hold. We were figuring out our…

Clap After Every Pirouette

When my daughter was little, she had the most amazing dance teacher, Jenna. Jenna was a mom of boys who loved the rough and tumble, but her dance studio was all about learning to move young bodies with grace and fluidity. While we no longer head off to Jenna’s classes…

Performing My First Self-infusion Was Empowering

With so many injuries lately, possibly because of a lack of exercise, I found it necessary to finally learn the ropes of self-infusion. Self-infusion of critical factor is important for me to prevent and treat bleeding episodes. As much as I have wanted to learn the craft, I…

A New Journey: My Son’s Chronic Pain

For the longest time, my son Caeleb being in a wheelchair was just part of the normal workings in my home. The constant bleeds that kept him immobile were in the forefront of my thoughts as I watched him struggle to get around. But after five years without bleeds,…