Columns

30 Ways to Find Hope in Dark Spaces

Feeling hopeless? Wondering how you will possibly find the energy to go on? Wanting to smash your alarm clock, pull your covers over your head, and hide in your bed all day long? You are not alone. Coping with hemophilia day in and day out, as a patient or a…

Will Waking Earlier Make Me Successful?

As I write this, it’s the end of the month again, that time when bills are due, debts rack up, and stress is high. I often can’t help but fantasize about what life might be like if I were more successful as an entrepreneur. In the business world, success is…

The Unexpected Moments When Hemophilia Strikes

I will never forget the night I was ordained as an elder in full connection in the United Methodist Church. We were about three and a half hours away from home at a church in the small town of Clovis, New Mexico. My ordination took place at the close…

Processing the Moments When Life Is Unfair

Earlier today, as I was browsing one of the Facebook mom groups I belong to, I came across another mother’s heartbreaking post. Her daughter, a toddler like my own girl, had been battling cancer for some time. All I could think was that she was too little to have to…

I Am Blessed With a Strong Community

When our youngest son, whom we affectionately call “MacDonald the Younger,” was diagnosed with hemophilia, my wife and I didn’t know how to respond. We were in a state of shock and hadn’t thought something like this was possible. Later, we learned that my wife was a hemophilia carrier,…

Sticking to Our Niche as a PwD-run Business

When my husband, Jared, and I first started our online jewelry store, we knew our business was not going to be like other enterprises in the market. He lives with hemophilia and epilepsy, while I am diagnosed with anxiety and depression. We feared that bleeds, seizures, and mental breakdowns would…

Developing a Strong Work Ethic With Hemophilia

From early on, we find success by developing a strong work ethic. Some of us come by it naturally, while others learn the value of working hard and doing the best job they can do. I realized that discipline brought great rewards, both musically and academically. When I failed to…