The Forgotten Factor - a Column by G Shellye Horowitz

G Shellye Horowitz, MA, PPS has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. Shellye has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders.Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab.Shellye lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.

May 14, 2019 Columns by G Shellye Horowitz

My Hate-Love Relationship with Hemophilia

I don’t think anyone likes having a chronic disease. I have good days, and I have bad days. Thankfully, the good days outnumber the bad ones. There are days when I tolerate having hemophilia, days when I can step back and see the gifts that have come…

April 30, 2019 Columns by G Shellye Horowitz

My Thoughts on Freedom and Hemophilia

This month, we celebrated the two holidays of Easter and Passover. Many of my Christian friends describe Easter as a celebration of freedom over sin and death due to the resurrection of Jesus Christ. My Jewish friends gather to recount the story of Passover, a celebration of freedom from slavery…

April 16, 2019 Columns by G Shellye Horowitz

We Must Recognize that Women Can Get Hemophilia

A genetic mutation for hemophilia has passed through five generations of my family. We can trace it from my great-grandfather, known simply as a “bleeder,” to my nephew. My great-grandfather passed the genetic mutation to my grandmother. My grandmother passed the genetic mutation to my father. My father…

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