Now and then, I think about my own health. I wonder if I’m caring for myself enough, or if my husband’s illnesses might be standing in the way. When health issues unexpectedly crop up for him due to his hemophilia or seizure disorder, certain worries are inevitable. What if…
HemoWife - a Column by Allyx Formalejo
I recently took a second freelance job to help move my family forward despite the challenges of the pandemic. I’ve only been at it for two weeks, but so far it’s been good. I’m praying for a good working relationship with my boss, and for my own personal growth in…
During the month of August, my husband, Jared, and I are happily celebrating our third year of marriage. Though the past few months have been rocky on account of the pandemic and some aspects of our family life that appear out of our control, we remain happy and grateful to…
When I was younger, I drew up several vision boards outlining my dream life. I simply listed my goals and the age by which I wanted to achieve them. I remember being 10 years old and writing in my diary with such strong conviction that I needed to own…
I’ve been diving deep into entrepreneurship lately. I’m striving to learn everything I can about business — and trying to understand its darkest secrets — in hopes of attaining a higher level of success. I consider this a crucial step toward achieving one of my biggest and most important life…
It was a celebratory day for the Philippines on July 26 when female powerlifter Hidilyn Diaz won gold at the Tokyo Olympics. It was her country’s first ever Olympic gold medal. I feel proud as a Filipino that our country has earned such a high honor. But for more…
I recently came across an NBC News Think essay about the oft-overlooked privilege of being able to focus on one’s studies while in college. It reminded me of how my parents supported me through my own college years, and how I failed to fully appreciate how fortunate I was…
I’ve been sick for most of this week with digestive issues. This is a chronic condition for me, but it always bothers me when it happens. I’m weak and unable to do much. I must gauge my energy levels and try to squeeze important tasks into the moments I…
One of the good things about being married to a person with disability (PwD) is that I can talk to my husband, Jared, objectively about disability and chronic illness. We often have conversations about it, and we aren’t afraid of self-criticism. In fact, we value it for the sake of…
Two weekends ago, my husband, Jared, had a lengthy bleeding episode. It happened after a fun Father’s Day trip to the zoo with our baby girl, Cittie, and our nanny. We had a wonderful time filled with several firsts since pandemic lockdowns eased, including our first time out of the…
Recent Posts
- New deal aims to bring BBM’s hemophilia A gene therapy to China
- Bleeding.org LIVE! turns the spotlight our way, but being seen is the first step
- I choose to share the power of my story with my blood brothers and sisters
- My son with hemophilia is living his dream — and mine
- China’s first hemophilia B gene therapy now approved in Macao