In past columns, I discussed my frustrations when anger rears its ugly head out of the shadows of my consciousness and takes hold of me. It isn’t pretty, nor is it the best choice to make. I wasn’t prepared to handle the overwhelming emotions that came over…
In the Twinkling of an Eye - a Column by Joe MacDonald
Removing Port Number 7
This week, we will consult with the surgeon who will have placed and removed six of my son’s seven port-a-caths. There will not be an eighth foreign object in “MacDonald the Younger’s” body, as it will not see port number eight. His treatment does not require access, and…
February 2014 proved to host the last bleed “MacDonald the Younger” faced thus far. The treatment plan created by our Hemophilia Treatment Center worked like a charm, and in the twinkling of an eye, the storm subsided and our quality of life improved drastically. What we didn’t…
My youngest son, wife, and I just returned from an appointment with our hematologist concerning plans for treatment. In the twinkling of an eye, our worlds changed. We will move to a new procedure requiring an injection given every two weeks. How could this be? Wasn’t it last…
Thank goodness for the great friendships that we forge along the way. Those of us who live with chronic illnesses learn the most about caring for our loved ones from those who are in our communities. While teaming with medical staff is crucial to the diagnosis and treatment…
It’s Not Our Fault!
Those of us who either have caregivers or serve as caregivers for others with chronic illness know what it is like to feel as if we are the cause of our loved one’s affliction. We may think that we said or did something wrong, and because of these…
We are in the middle of January and some of the resolutions we promised to keep just a couple of weeks ago already seem to be fading away. Our intentions were wonderful and our commitment admirable. So what happened to our fortitude? Did something act as a roadblock…
What Is in a Name?
Many of us have names that represent legacies and traditions handed down from generations past. My mom named me after my grandfather’s brother who died when he was 11. I often think of him and wonder if I carried on the family name with pride. Would he have been…
Our Greatest Masterpieces
Last year, I traveled to Chicago and saw the masterpiece “A Sunday on La Grande Jatte.” The artist, Georges Seurat, captured a beautiful scene utilizing a technique known as pointillism. Each dot contributes to the complete work of art. To leave anything out is to change…
When I Have Nothing Left to Give
I’ve spent several nights in the hospital with my son, and I play tag with my wife. It is her turn to trade duties with me. I leave the medical center and head straight to the church, lead worship, eat a meal, and return to the hospital to…
Recent Posts
- Encountering people who don’t understand my son’s hemophilia
- My son is riding the roller coaster of hemophilia with his arms in the air
- Switching clotting factor products doesn’t lead to new inhibitors
- Why we’ll keep pushing for better access to factor replacement therapy
- Not leaving the room, but riding for a cause I believe in
