Brandi’s journey with hemophilia Recently, I had the opportunity to speak with Brandi Worthington about her experiences as a woman living with hemophilia. Brandi was in her 30s when she received a diagnosis that linked hemophilia to her long-standing bleeding issues. This revelation came 23 years after the onset of…
The Forgotten Factor - a Column by G Shellye Horowitz
This month, we celebrated the two holidays of Easter and Passover. Many of my Christian friends describe Easter as a celebration of freedom over sin and death due to the resurrection of Jesus Christ. My Jewish friends gather to recount the story of Passover, a celebration of freedom from slavery…
A genetic mutation for hemophilia has passed through five generations of my family. We can trace it from my great-grandfather, known simply as a “bleeder,” to my nephew. My great-grandfather passed the genetic mutation to my grandmother. My grandmother passed the genetic mutation to my father. My father…
Recent Posts
- Who gets to tell the hemophilia story?
- I advocate so the people in power hear from someone affected by hemophilia
- I miss being my sons’ advocate, but am proud of their independence
- My sons navigated hemophilia like two young boys learning to swim
- Repeated Altuviiio dosing doesn’t boost risk of blood clots in mice
