Navigating metro transportation with hemophilia

Commuting in a crowded metropolis can be a daunting experience. Many cities around the world struggle with inadequate public transportation infrastructure, poor urban planning, and heavily congested roads.

In places like metropolitan Manila, where we live in the Philippines, navigating public transportation can feel like a game of survival. Articles abound detailing the daily struggles of long queues, jam-packed trains, towering footbridges and train stations aptly nicknamed “Stairways to Heaven,” and inefficient transit systems.

For people with hemophilia, the challenges of commuting can be even more intimidating. The risks associated with accidental bumps, prolonged standing, or navigating flights of stairs without an elevator can make public transportation seem unfeasible. Some parents of children with hemophilia fear letting them commute independently, which is a valid concern. Safety is paramount, and many caregivers prefer private vehicles to minimize potential risks.

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However, driving in a metropolitan area brings its own set of frustrations. Heavy traffic, narrow roads, and limited parking spaces often make car travel just as stressful as public transportation. In some cities, short trips that should take minutes can stretch into hours due to congestion. Certain areas are inaccessible by car, either because of road layouts, a lack of parking, or the presence of informal housing.

I once attempted to drive through Manila, only to face an urban maze of confusing traffic rules and erratic roads. In one particularly unfortunate incident, I was stopped four times for traffic violations! On another occasion, my driver’s license was confiscated. When I went to retrieve it, I was horrified to learn that city officials had lost it! I had to go through the entire application process again just to get a new copy. Experiences like these made me appreciate the practicality of public transportation in metro areas — even with all its hassles.

Learning to commute with hemophilia in mind

Despite the drawbacks, my husband, Jared, who has hemophilia B, enjoys commuting. He values the sense of connection it provides and sees it as an opportunity to experience city life up close.

When we moved into a rented condo and temporarily lost access to our car, we embraced public transportation as a family. We climbed endless staircases to reach elevated train stations, sprinted for overcrowded buses and jeepneys, and traversed bustling streets. While having a car is undeniably convenient, commuting allowed us to experience the city’s pulse in a way driving never could.

For those with hemophilia who want — or need — to commute, careful planning makes a world of difference. Here are some key strategies that help us:

• Plan your route in advance. Some transit stations have multiple flights of stairs, which can be tough on the joints. Research ahead of time which stations have working elevators and escalators.
• Use elevators whenever possible. Many disabilities are invisible, including hemophilia, so it’s important to advocate for yourself when necessary. If you need accommodations, ask confidently.
• Keep transit cards loaded. Avoid long queues and unnecessary hassle by ensuring you always have enough balance on your card.
• Make use of disability accommodations. If you qualify for a disability card or discount in your country, take full advantage of priority seating, reduced fares, and accessible services.
• Use designated accessibility services. Many cities have special commuter lanes or priority boarding for people with disabilities. Know where to find them and make use of them.
• Seek guidance from experienced commuters. Recently, my dad visited us, and his knowledge of city shortcuts, transportation hacks, and walking routes helped us navigate more efficiently. Traveling with someone who understands the system can make commuting far less overwhelming.

While public transportation can be unpredictable, with some foresight and preparation, it’s possible to make it work, even for those with medical conditions that require extra caution. Whether in Metro Manila or any other bustling city, mastering the commute is all about smart planning and adaptability.

Note: Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Hemophilia News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to hemophilia.