Putting Disability in the Entrepreneurial Spotlight
Over the past few months, my husband and I have been working extra hard on our jewelry retail business. It’s surprising how much work goes into running a small online store. My…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
Understanding the nuances of hemophilia bleeding
After a decade of living alongside my husband, Jared, and his severe hemophilia B, I’ve learned that not all bleeding is as straightforward as it may seem. Bleeds vary widely, not just in…
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Embracing an Imperfect Life with ‘Amor Fati’
Life is awful from time to time. As someone with mental illness who is married to a person with hemophilia and epilepsy, I am no stranger to that thought. Various things can trigger…
Disability, Codependency, and Narcissistic Relationships
My husband, Jared, and I both share an interest in psychology and human relationships. We often bond over discussions about mental health and the way human beings interact. As a couple affected by hemophilia…
My Daughter Has a Life of Her Own
My toddler, Cittie, recently got a new tricycle. She took to it instantly, although she couldn’t reach the pedals yet. The trike has a long attachment that allows us to take turns driving her…
How Mental Illness Affects My Relationship with My Hemophiliac Husband
Two years ago, I was diagnosed with anxiety and depression. I always knew I was struggling, but somehow that struggle didn’t feel real until I received a diagnosis. I battled eating disorders and…
My Mother’s Day Wish Is to Keep My Identity
I celebrated Mother’s Day a week ago at home with my family. We held a sale at our Instagram shop for the family jewelry business and sold several Mother’s Day goodies. It was a…
4 Tips for Dealing with Caregiver Fatigue
Spoiler alert: This column shares brief plot details from the Netflix series “Atypical.” Caregiver fatigue is real. It’s normal, and people should talk about it. Lately, my husband and I have…
What Happens When the Pandemic Ends?
What’s new, month of May? Why hello there, extended coronavirus lockdown! Our community quarantine was set to end on April 30. In the last few days of April, I…
Why We’re Planning to Get a Dog
My husband, Jared, and I recently talked about getting a dog. I’m excited and can’t wait. We spent an entire night flipping through pictures of various dog breeds. We finally managed to narrow down…
Focusing on Myself to Stay Sane
My husband is down with a bleed for the second time since the COVID-19 quarantine began. It hasn’t even been a week since he recovered from his latest abdominal…
My Husband Is Starting a Bleeding Journal
My husband, Jared, has a new resolution: to start keeping a bleeding journal. In his journal, Jared plans to write about recent bleeding episodes. Each entry will describe the sensation of a particular bleed,…
Dealing with My Husband’s Bleeding Episode During Quarantine
“I wish your ab would be better now,” I tell my husband Jared in a pleading voice. Jared is recovering from a bleed in the abdominal region that has taken a toll on his…
