In the Face of Uncertainty, Tiny Things Matter Most
Two members of our local hemophilia community passed away in recent weeks. My husband, Jared, knew one of them, who succumbed to an iliopsoas bleed. The other was an older member of the…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
‘Nothing special’ is special in a life with hemophilia in the picture
Life when you’re married to someone with severe hemophilia B often feels unpredictable. One moment, everything seems fine, and the next, a spontaneous bleed or unexpected health concern throws everything into chaos. Over…
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Sometimes I Need to Take My Mind Off You
The new year is a wonderful time. To many of us, it’s a symbol of fresh hope and new beginnings. I greeted January with many dreams and the hope that they may come…
The Joys of an Occasional Reprieve
I’d been sick with acute respiratory troubles for almost a week. Not a minute had gone by without a sniffle or a sneeze. My sinuses had been painful and horribly congested, my throat inflamed,…
Enjoying the Gifts and Counting Our Blessings
As early as September, colorful Christmas lights adorn all sorts of spaces in the Philippines. Families begin decorating their homes and stores start to roll out out holiday promotions: holiday-themed drinks, planners for collecting…
My Baby’s Becoming a Daddy’s Girl
My 10-month-old baby, Cittie, is becoming a daddy’s girl. She looks for her daddy when she wants to play. She clings to him when she wants to be carried. She gets uneasy whenever he…
Dreams of a Better Future
My husband, Jared, and I are at a point in our lives where our careers have taken on greater significance. It seems like just yesterday when we were college students eager to graduate and…
As New Parents, Scheduling Activities Is More Important than Ever
The importance of keeping a consistent schedule cannot be understated. A solid daily routine can help you save time, be more effective, and reach goals faster. As a new mom and wife to…
Adulting Is Hard, Especially with Chronic Illness
Many in my millennial generation dread adulting. The idea of surviving in the real world without the comfort of a family safety net is daunting. Young adults who are barely scraping by can feel…
Redefining Gender Roles as a Couple Living with Chronic Illness
I have never been one to subscribe to traditional gender stereotypes. Thankfully, we now live in a world that is more accepting of people who live differently than society’s outdated views of…
Raising Empathetic Children Can Make a Difference
My daughter, Cittie, is now 8 months old. She has obvious likes and dislikes and is starting to develop habits and character traits. I can sense that she’s about to become a full-fledged toddler.
Iliopsoas Bleeds Are Stressful to Both the Patient and the Caregiver
Last week, my husband had another random bleed in an extremely unfortunate location: his iliopsoas muscle group. It started as a lump on his hip, which he didn’t initially think much of because…
A Little Money Is a Big Deal When a Partner Has a Disability
I lost some money today during an online transaction. It was 3,150 Philippine pesos (around $60). The amount was a client’s payment for a product she had bought from our online jewelry store. That…
