As a Work-from-home Mom, I Have 3 Full-time Roles
I am a work-from-home mom, which means that I have two full-time positions as a “mom” and a “worker.” I am also a full-time carer to my husband with hemophilia. Thankfully, that position affords…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
Going back to basics and finding strength on the floor
My husband, Jared, doesn’t need a gym anymore, or dumbbells, or fancy machines. These days, all he needs is the floor, a bit of space, and his body. He still loves the gym and…
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My Husband and I Are Blessed in Our First Year of Marriage
As I pen this column, my husband, Jared, and I are celebrating a full year of marriage. It’s been a blissful one, with so many milestones reached and memorable moments experienced. Our baby, Cittie,…
Life Goes On Despite My Husband’s Hemophilia and Epilepsy
Now and then, my husband, Jared, loses consciousness and falls to the ground. To an unknowing onlooker, the sight is alarming. Some wonder if he has fainted. Others worry about his heart or think…
My Husband Is ‘Happy to Serve’ Despite Injuries
A few days ago, I gave my husband, Jared, a factor IX infusion for a back bleed. It wasn’t so bad that he couldn’t move around, but in his words, it felt “annoying.”…
The Story of a Pearl: Embracing Irritants in a Process of Becoming
I’ve recently taken to collecting pearls. It started as a stock-obtaining activity for the jewelry business I run with my husband, Jared, who has hemophilia. It has since grown into a full-fledged personal obsession.
Practicing Self-care as a Mom and a Spouse to a Person with Hemophilia
It’s been nearly five months since I became a mom to baby Cittie. In those months, my life has been transformed into something completely different. My social media feed, which used to…
How a Thumb Sprain Helped Me Understand Synovitis Pain
I sprained my thumb in my sleep a few days ago. The symptoms point to a condition called De Quervain’s tenosynovitis. An extremely painful sensation runs from my thumb to my wrist joint…
Mother’s Day Reflections from a New Mom and Spouse of a Person with Disability
As I write this, Mother’s Day is approaching, and tributes to mothers have begun filling the pages of local blogs and publications. They speak of the heroism of moms around the world. The sacrifices…
The Truths About Being a Carer
When I’m browsing online, I often see posts dedicated to carers of people with disabilities, calling them “unsung heroes” for sacrificing time and convenience for their loved ones’ well-being. As the wife of a…
My First Infusion Experience
Last weekend, I had an experience I had long dreamed about. This experience had been on my list of “things to achieve” for several years since I met my husband, Jared, who…
This Is What I Ask of You
Dear Chronically Ill Partner, I know life isn’t always easy for you. You have grown up believing life dealt you a terrible deck of cards. You’re no stranger to the feeling of…
Our Parenting Essentials as a Couple with Disabilities
Baby Cittie turned 2 months old on March 18. It’s been a whirlwind couple of months filled with sleepless nights and endless smiles. Cittie is thriving; she’s doubled her weight, put…
