I’ve lost count of how many times I’ve seen phrases like “victims of hemophilia” or “afflicted with hemophilia” in local news articles. Sometimes the phrase is “suffering from hemophilia.”…
Read more
Fat-shaming is a widespread issue that can also affect people with hemophilia, especially young children. At its core, fat-shaming involves making negative comments or judgments about a person’s weight, which can lead to…
One of the most pervasive and amusing misconceptions about hemophilia is that a person with the condition could bleed to death from a tiny paper cut. People often think that those with…
Ever since turning 30, I’ve been on a fast track toward self-improvement, determined to get the most out of life. I want to experience things meaningfully with my husband and daughter, doing things that…
When the University of the Philippines (UP) unveiled its new motto, “Honor. Excellence. Service.,” this past June, it took me back to my days there as a student. The phrase “Serve…
Becoming a parent changes everything in life. This was certainly true for my husband, Jared, who’d always dreamed of being a father, despite having severe hemophilia B and frequent seizures. When our…
Lately, I’ve been feeling burned out in my day job as a virtual assistant. While it helps pay the bills, the tasks are sometimes repetitive, and I often long for something that keeps me…
As a mom and piercing enthusiast, I’ve always looked forward to the day my daughter, Cittie, would want her ears repierced. They were pierced when she was a baby, but her curiosity back then…
For many millennial families, the dining table has become somewhat of a relic. What was once a central feature of family life — where meals were shared, stories told, and connections made…
My husband, Jared, and I are navigating another significant life transition. Our daughter, Cittie, is now on her second week of kindergarten, which marks the official start of formal schooling here in the Philippines.
My husband, Jared, enjoys cooking. As I write this, a pot of gumbo simmers on the stove. Its strong aroma drifts throughout our open-layout house and toward my work desk. My stomach…
I recently picked up a fascinating book, “The Courage to Be Disliked,” by Ichiro Kishimi and Fumitake Koga. The book dives into the philosophy of Alfred Adler, a pioneering figure…
Navigating life with hemophilia in the Philippines presents unique and daunting challenges. The financial burden of treatment is one of the most significant hurdles hemophiliacs face. A 1,000-unit vial of factor…
Get regular updates to your inbox.
