Rediscovering a song that reflects our living with hemophilia
I’ve written here numerous times about my love for the American pop-punk band Fall Out Boy. Since discovering them in 2007, I’ve been a huge fan of not just their music, but…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
Say it with me: Disability is not a bad word
When people talk about hemophilia, some deliberately avoid calling it a disability. Instead, they’ll say “a medical condition” or “a health challenge,” as if disability were a negative label. Some who embrace the…
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Musing about cosmic irony helps my husband cope with hemophilia
Irony manifests in diverse forms, but cosmic irony captivates me the most. This literary device suggests that the universe possesses a sense of humor, purposefully orchestrating situations contrary to expected outcomes. This often…
Dealing with loneliness during my husband’s bleeding episodes
Loneliness in marriage is a controversial subject, and one often discussed in a negative light. But in my marriage to my husband, Jared, who has severe hemophilia B and a seizure disorder, it’s…
Will you be my valentine? Here are some hemophilia-friendly date ideas
As the season of love and romance approaches, my husband, Jared, and I are already brainstorming ideas for possible February dates. We’re no strangers to unconventional coupledom. A trip to a park or a…
Living with hemophilia means adapting and accepting
The new year ushered in an unexpected surprise: the near demise of my six-year-old laptop. I lifted the rose gold aluminum top expecting business as usual only to find a huge black line running…
In 2024, I’m following the ‘good-better-best’ goal-setting plan
In the middle of a work meeting, I stumbled upon an intriguing concept that resonated with me on a personal level: the good-better-best goal system. This is a goal-setting approach that allows…
A few disability protocols can’t stop the music — or fans like us
My husband, Jared, and I attended our first international concert together this month when we saw the American rock band Fall Out Boy at the Araneta Coliseum in Quezon City, Philippines. This…
A recurrent bleed delayed our Christmas preparations, but it’s OK
In the Philippines, where we live, Christmas isn’t confined to a single day. It unfolds as a season that spans about a third of the year, kicking off in the first of the…
Why my husband with hemophilia can be hard on himself
My husband, Jared, is a diligent worker and constant high achiever. An honor student in school, he has since excelled in various fields. From running a business to trying his hand at voice…
My husband’s hemophilia helped him sense his life purpose early
One ordinary evening, while a dear cousin and I relaxed in my living room, we delved into a profound conversation about purpose. We pondered why some people who struggle with mental health would cling…
Reflecting on what could’ve been helps me appreciate the present
Whenever I scroll through my Instagram feed, I often reflect on the “what ifs” in my life. For example, what if my life had unfolded exactly as I had envisioned it during my youth?…
Why our home is a sanctuary for friends who are struggling
My husband, Jared, and I have an open-door policy for our friends. We warmly welcome them, whether they need a place to stay for the night, a safe haven after a tough experience, a…
