When my oldest son, Julian, was 5, our paths crossed in the medical world. My wife, Cazandra, was out of town, and my boy and I were holding down the fort at home. Julian had hemophilia with a low-titer inhibitor and thus needed to infuse factor VIII every day.
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Preparing for major spinal surgery has me feeling more than the usual pre-op jitters. There’s something more profound at work — a feeling that connects me to the years of watching my son Caeleb endure numerous surgeries as a result of complications from severe hemophilia with an inhibitor. Because…
I’ve lately come to realize that pride and dignity are core values in my life, profoundly influencing my sense of self and my interactions with others. Although pride is sometimes seen as a negative trait, there’s a crucial distinction between healthy and unhealthy pride. The former allows us to feel…
Last week was busy. I spent four days in the mountains on a clergy retreat at the Sacramento Camp and Conference Center in southern New Mexico. When the retreat ended last Thursday, I went to my home elsewhere in the state, met a group at my church, and then…
In my Oct. 4 column, I reflected on the devastation Hurricane Helene had inflicted on my community in Punta Gorda, Florida. I never imagined that just weeks later, I’d be writing about a second hurricane — Milton — that would prove even more destructive to my town than Helene.
When my son Caeleb was younger, we had periods when we spent more time in the hospital than at home because of his hemophilia complications. During those times, our family moved heaven and earth to stay connected. Caeleb was often admitted to the University of New Mexico Hospital’s…
My fear of letting go of the past stems in part from my anxiety about change. I want my sons, who both have hemophilia, to take control of their lives and be responsible as they move through the world. They leave, but what about me? I’m not going…
In a column last month, I discussed how I felt when attending the recent annual conference of the National Bleeding Disorders Foundation in Atlanta. One of the highlights was when my wife, Cazandra, and I presented our own session, “Finding Our Way Back to Each Other.” Before…
This year’s annual Bleeding Disorders Conference began a week ago in Atlanta and ended on Saturday. While it wasn’t my first such event, it brought several new opportunities. For one thing, as my wife, Cazandra, and I packed for the event, I felt mixed emotions. At recent conferences,…
I was honored to speak with my husband last week at the National Bleeding Disorders Foundation‘s annual Bleeding Disorders Conference, held this year in Atlanta. It was a memorable experience to share our story with fellow community members. While I’ve spoken at conferences nationwide for many years,…