Two likes. No comments. Just. Two. Likes. A friend, who has a son with hemophilia, told me about her daughter’s new diagnosis unrelated to bleeding disorders. She was scared and unsure of what to expect for her daughter, and as an experienced “hemo mom,” she immediately found a…

Hemophilia is an inherited disease that prevents blood from clotting, a process that’s required to stop bleeding. According to the Hemophilia Federation of America, there are various complications that can arise from having a bleeding disorder like hemophilia. MORE: 4 Hemophilia Screening Tests Joint damage: One of the most frequent complications…

“Stop the Bleeding!” is an online fictional mockumentary series which follows a hapless and dysfunctional organization that aims to raise money and awareness of bleeding disorders such as hemophilia. MORE: How you can make an impact today In this episode shared by BloodFeed, the team…

When my oldest son, Julian, started elementary school in 2001, I was encouraged to proceed with a 504 plan for his protection. Section 504 refers to the Rehabilitation Act of 1973 that guarantees the needs of students with disabilities are met in school. I was surprised when I…

Bleeding disorders affect everyone, male or female, no matter how old you are or where you are in the world. If left untreated, bleeding disorders can lead to serious consequences, and may even cause death. Bleeding disorder patients in developing countries do not have any support from their governments in regards to necessary care. In fact, they may not even get help when it comes to being diagnosed. Unfortunately, these conditions often affect children, who needlessly suffer through all the awful symptoms of a bleeding disorder,…

Stop the Bleeding! is a comedy web series set at a fictional non-profit organization. The award-winning series features various members of the dysfunctional organization and the conveniently placed hemophilia treatment center (HTC) next door in a mockumentary style. MORE: Six of the best mobile apps for managing…

When you live with a bleeding disorder, life can sometimes seem to be nothing but chaos. Just as one bleed seems to heal, another one begins. You start to infuse a factor at closer intervals, and before you know it, you are setting your alarm for factor dosing…

We know dealing with hemophilia sometimes feels like an uphill battle, both for the patients and the caregivers. You feel like you’re not doing enough or as if the disease is taking up all your time and attention. To help you on your journey, we’ve gathered a few quotes we thought…

https://www.youtube.com/watch?v=rvJGuJunOOk In this video from the Bleeding Disorders Community, Patrick Lynch from Believe Limited explains what the Teen Impact Awards are and how it highlights the great work young people with bleeding disorders are doing in their schools, homes and communities. MORE: 13 fast facts about…

An Instagram account is using well-loved characters from children’s animated movies to create memes that highlight some of the issues people living with chronic illnesses face in their everyday lives. MORE: How kids can explain hemophilia to their friends As reported in The Mighty, the account was set…