Showing 2970 results for "hemophilia A"

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Remembering My Mom, a Brave Chronic Illness Fighter

My mother passed away a month ago. I thought I’d be ready after six years of dealing with her condition. I was wrong. In 2012, doctors diagnosed her with diffuse large B-cell lymphoma (a blood cancer). She went into remission, but four years later, the cancer returned, this time…

Finding the Meaning in the Word ‘Team’

I am originally from Texas, so I know the meaning of the word “team.” The Lone Star State reveres sports organizations like no other place in the country. Friday nights in the fall are overwhelmed with football, marching bands, and great times to visit with friends. Everyone gathers together with…

Finding Answers Together

Both of my sons have expressed frustration at having a bleeding disorder. After experiencing a problematic infusion, each has cried out, “I hate having hemophilia!” While they are almost 10 years apart, the same response lets me know that they are “getting it.” Sticking a needle in a child’s arm…

Why Do We Walk? Because We Can!

I recently spoke to members of the Sangre de Oro Chapter of the National Hemophilia Foundation, based in Albuquerque, New Mexico. They are my family. We gathered to “kick off” the upcoming Unite for Bleeding Disorders walk. We had a friendly competition to see whose team…