As a caregiver, hope exists in practically my every waking thought. I wish for things to improve regarding my loved ones’ treatment. Hope keeps me going so that I may provide the best care possible for them. Four simple letters put together in the proper order set my heart and…
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Reports of translucent particles of being detected in Hemlibra (emicizumab) in 2019 do not pose a safety risk or affect the therapy’s effectiveness and, according to Roche, health authorities have agreed that the treatment’s benefit/risk profile remains unchanged. Yet, the company is proposing the use of a…
Over the past few months, my husband and I have been working extra hard on our jewelry retail business. It’s surprising how much work goes into running a small online store. My husband, Jared, thinks it’s because only two of us handle all aspects of the business, including…
Our baby girl, Cittie, is 18 months old. She’s feisty and curious about the world around her. Currently, her favorite words are “up,” “open,” and “close.” She likes being carried so she can observe things from an adult vantage point. She also wants to touch and tinker with every object…
As I pen this column, my husband, Jared, and I are celebrating a full year of marriage. It’s been a blissful one, with so many milestones reached and memorable moments experienced. Our baby, Cittie, was born six months ago, and since then, life has been tremendously different — in an…
The start of a new year often brings talk of ambitious goals, including growth, progress, and milestones we hope to achieve by year’s end. My husband, Jared, and I have those goals. In fact, we’re approaching 2026 with a specific list of things we want to build, maintain, and improve…
This week, I’m doing something I’ve never done before: stepping into the ring of politics and lobbying my congresspeople. Many of those in the bleeding disorders community gather annually in Washington, D.C., to meet with U.S. representatives and senators. The goal is simple: to remind legislators that medical care…
“I wish your ab would be better now,” I tell my husband Jared in a pleading voice. Jared is recovering from a bleed in the abdominal region that has taken a toll on his mobility for the past week. He’s already gone through a couple of factor infusions but still…